Recent Activity
Activity stream for all registered members at Science for ME.
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Hoopoe liked Joan Crawford's post in the thread Lancet - Medically unexplained symptoms explained.
Commentary re newly published? trial on MUS in the Lancet. Silje Endresen Reme https://doi.org/10.1016/S0140-6736(24)01138-3...
Jun 14, 2024 at 5:23 PM -
Trish liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
I recommend not saying that. As Prof W disputes it and says he was not involved. yes IIRC it says he was not involved. I'm not saying...
Jun 14, 2024 at 5:22 PM -
rvallee replied to the thread USA: The RECOVER Initiative - Long Covid research.
[IMG] The skepticism is unfortunately not only well-deserved, but far lower than it deserves to be. The dumpster fire that was the...
Jun 14, 2024 at 5:22 PM -
tornandfrayed liked rvallee's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
They're writing a paper... about having done a study? Which is already published? Which they recognize was not statistically...
Jun 14, 2024 at 5:19 PM -
tornandfrayed liked Sean's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
The finding that avoidance behaviour mediated change in several outcomes supported our theoretical fear-avoidance model on which DS-CBT...
Jun 14, 2024 at 5:19 PM -
tornandfrayed liked rvallee's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
There is an odd part in the paper that talks about how based on this, it may be better to try to make the seizures less bothersome,...
Jun 14, 2024 at 5:19 PM -
dave30th replied to the thread Lancet - Medically unexplained symptoms explained.
What specifically happened in 2015? Interestingly, the same year of the IOM report on ME/CFS.
Jun 14, 2024 at 5:19 PM -
tornandfrayed liked Sean's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
Sounds to me like what they are really saying is that it is everybody else who is inconvenienced and embarrassed by these seizures. So...
Jun 14, 2024 at 5:19 PM -
tornandfrayed liked MrMagoo's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
It’s much better to have a dissociative seizure alone at home, than in a workplace where others can summon medical attention. Obviously....
Jun 14, 2024 at 5:19 PM -
Joan Crawford replied to the thread : TV casting call for people living with ME/CFS.
I have forwarded my two polite, informative emails that I sent to producer Janet Chute on Tuesday and Thursday to the Head of Television...
Jun 14, 2024 at 5:18 PM -
dave30th replied to the thread Lancet - Medically unexplained symptoms explained.
Is there an established minimal clinically significant difference for the PHQ-15?
Jun 14, 2024 at 5:17 PM -
JemPD liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
BACME have confirmed they are not involved.
Jun 14, 2024 at 5:16 PM -
Joan Crawford replied to the thread : TV casting call for people living with ME/CFS.
BACME have confirmed they are not involved.
Jun 14, 2024 at 5:15 PM
