Recent Activity
Activity stream for all registered members at Science for ME.
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Lou B Lou liked Trish's post in the thread : TV casting call for people living with ME/CFS.
Anything from the MEA on this? There should be someone official explaining to the producers how harmful this is.
Jun 14, 2024 at 12:37 PM -
Trish liked MelbME's post in the thread Open Medicine Foundation (OMF).
Thank you, we have made a more concerted effort in the space of developing tools needed to improve research on ME/CFS. I think FUNCAP is...
Jun 14, 2024 at 12:37 PM -
JemPD replied to the thread : TV casting call for people living with ME/CFS.
I'm sorry to say i think its highly likely the MEA are the charity who've provided a volunteer. Hope i'm wrong but... if their fb page...
Jun 14, 2024 at 12:36 PM -
Trish liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
We need to be very careful that this isnt actually someone seeking to present the abuse as 'false abuse claims against drs/scientists'...
Jun 14, 2024 at 12:36 PM -
Aaron liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
We need to be very careful that this isnt actually someone seeking to present the abuse as 'false abuse claims against drs/scientists'...
Jun 14, 2024 at 12:34 PM -
Trish replied to the thread Open Medicine Foundation (OMF).
Are you aware of or in touch with people researching the Visible app that uses HR and HRV monitoring as well as symptoms and FUNCAP? I'm...
Jun 14, 2024 at 12:34 PM -
JemPD replied to the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
We need to be very careful that this isnt actually someone seeking to present the abuse as 'false abuse claims against drs/scientists'...
Jun 14, 2024 at 12:34 PM -
MelbME replied to the thread Open Medicine Foundation (OMF).
Thank you, we have made a more concerted effort in the space of developing tools needed to improve research on ME/CFS. I think FUNCAP is...
Jun 14, 2024 at 12:33 PM -
Trish liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yeah you can track symptoms as many times s you like over the day. I was just using an example in my description of day to day. But...
Jun 14, 2024 at 12:33 PM -
Trish replied to the thread : TV casting call for people living with ME/CFS.
Anything from the MEA on this? There should be someone official explaining to the producers how harmful this is.
Jun 14, 2024 at 12:32 PM -
Trish liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
The claims of the documentary producer, Janet Chute, are pretty weird. She claims to want to explore how people with non visible...
Jun 14, 2024 at 12:31 PM -
Turtle liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yeah you can track symptoms as many times s you like over the day. I was just using an example in my description of day to day. But...
Jun 14, 2024 at 12:29 PM -
Trish liked Aaron's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
No problem! I’ll send over the Monblot article and some of the other links and videos that have been contributed. Thanks!
Jun 14, 2024 at 12:28 PM
