Recent Activity
Activity stream for all registered members at Science for ME.
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RaviHVJ replied to the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
This is one idea about how to structure it: Hi Divya! Thanks for reaching out to me. There's a lot to say about this - ME/CFS patients...
Jun 14, 2024 at 4:18 PM -
Joan Crawford liked ME/CFS Skeptic's post in the thread Lancet - Medically unexplained symptoms explained.
Apparently, the symptoms are no longer medically unexplained. That seems to be the main message that they want to spread. In the...
Jun 14, 2024 at 4:17 PM -
Joan Crawford liked ME/CFS Skeptic's post in the thread Lancet - Medically unexplained symptoms explained.
Another flaw: just noted that the statistical analysis section says: "...no adjustments were made for multiplicity."
Jun 14, 2024 at 4:16 PM -
Joan Crawford liked ME/CFS Skeptic's post in the thread Lancet - Medically unexplained symptoms explained.
Looks like a highly problematic study. It has the design A +B versus A. The control group got no intervention at all, only the usual...
Jun 14, 2024 at 4:16 PM -
Joan Crawford liked rvallee's post in the thread Lancet - Medically unexplained symptoms explained.
This is pure nonsense and it has zero relevance to the issue of suffering from chronic symptoms. There's so many layers of nonsense to...
Jun 14, 2024 at 4:16 PM -
Starlight liked DigitalDrifter's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
I'm very severe and can't type much but here's something I wrote back in 2018 about my experience: I was sectioned on 20th August 2014...
Jun 14, 2024 at 4:14 PM -
Starlight liked Lou B Lou's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal 'From harmful ‘therapies’ to social...
Jun 14, 2024 at 4:14 PM -
Starlight liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
Also direct them to Sean O'Neill from The Times. featured here on channel 4 news, he'd have a major story to tell i reckon M.E.: Lives...
Jun 14, 2024 at 4:14 PM -
Starlight liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
We need to be very careful that this isnt actually someone seeking to present the abuse as 'false abuse claims against drs/scientists'...
Jun 14, 2024 at 4:14 PM -
Starlight liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
you spoke about Ean Proctor.... not sure if you seen this video with Ean and his parents (it's later on in the clip) ME is still not...
Jun 14, 2024 at 4:14 PM -
Starlight liked Aaron's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
No problem! I’ll send over the Monblot article and some of the other links and videos that have been contributed. Thanks!
Jun 14, 2024 at 4:13 PM -
Starlight liked Trish's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
You could also link them to this thread.
Jun 14, 2024 at 4:13 PM -
Starlight liked Trish's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
In situations like this, I think far better to provide links to people with expertise rather than risking getting facts wrong.
Jun 14, 2024 at 4:13 PM -
Starlight liked Lou B Lou's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
. https://me-pedia.org/wiki/Ean_Proctor Dr. Ann McIntire's Frontline Program about ME/CFS (Vintage VHS), 1990s? This documentary...
Jun 14, 2024 at 4:13 PM -
Starlight liked Yann04's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
George Monbiot article is the only mainstream article I know of that property called out Wesseley.
Jun 14, 2024 at 4:13 PM
