Recent Activity
Activity stream for all registered members at Science for ME.
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cfsandmore liked Kitty's post in the thread Open Medicine Foundation (OMF).
Not able to speak for others, but I can't. I may wake up feeling much worse than usual, yet two hours later feel as well as I ever do....
Jun 14, 2024 at 2:30 PM -
Kitty liked JemPD's post in the thread : TV casting call for people living with ME/CFS.
I'm sorry to say i think its highly likely the MEA are the charity who've provided a volunteer. Hope i'm wrong but... if their fb page...
Jun 14, 2024 at 2:28 PM -
Kitty liked Trish's post in the thread : TV casting call for people living with ME/CFS.
Anything from the MEA on this? There should be someone official explaining to the producers how harmful this is.
Jun 14, 2024 at 2:28 PM -
Kitty liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
The claims of the documentary producer, Janet Chute, are pretty weird. She claims to want to explore how people with non visible...
Jun 14, 2024 at 2:28 PM -
Kitty liked Andy's post in the thread : TV casting call for people living with ME/CFS.
Action for ME on Twitter, "We have been made aware of & understand the concerns relating to the Electric Robin Docu Series & its...
Jun 14, 2024 at 2:28 PM -
Wyva liked Fainbrog's post in the thread : TV casting call for people living with ME/CFS.
They have said it’s not them advising on this. [MEDIA]
Jun 14, 2024 at 2:28 PM -
Kitty liked JemPD's post in the thread : TV casting call for people living with ME/CFS.
thats a relief!
Jun 14, 2024 at 2:28 PM -
Kitty liked Trish's post in the thread : TV casting call for people living with ME/CFS.
That's good. So which charity are they talking about?
Jun 14, 2024 at 2:28 PM -
Kitty liked Fainbrog's post in the thread : TV casting call for people living with ME/CFS.
They have said it’s not them advising on this. [MEDIA]
Jun 14, 2024 at 2:28 PM -
Kitty liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
Excellent email @PhysiosforME thank you
Jun 14, 2024 at 2:27 PM -
Kitty liked Trish's post in the thread : TV casting call for people living with ME/CFS.
Fantastic, thank you so much, @PhysiosforME
Jun 14, 2024 at 2:27 PM -
Kitty liked PhysiosforME's post in the thread : TV casting call for people living with ME/CFS.
We have emailed the TV company: Dear Janet, we are a research, education and advocacy group aiming to improve physiotherapy...
Jun 14, 2024 at 2:27 PM -
Deanne NZ liked DigitalDrifter's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
I'm very severe and can't type much but here's something I wrote back in 2018 about my experience: I was sectioned on 20th August 2014...
Jun 14, 2024 at 2:27 PM -
Kitty liked Trish's post in the thread : TV casting call for people living with ME/CFS.
That was my worry too. There does seem to be something going badly wrong with the MEA.
Jun 14, 2024 at 2:27 PM -
Lou B Lou liked DigitalDrifter's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
I'm very severe and can't type much but here's something I wrote back in 2018 about my experience: I was sectioned on 20th August 2014...
Jun 14, 2024 at 2:27 PM
