Recent Activity
Activity stream for all registered members at Science for ME.
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livinglighter liked csinclair02's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
One has to wonder what it would have been like to be a fly on the wall at NIH. I can't imagine that Nath likes working with Walitt. But...
Jun 14, 2024 at 10:05 AM -
livinglighter liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I have learned the hard way over the decades that every time I think I might be going a little too hard on the ME-is-psychosomatic crowd...
Jun 14, 2024 at 10:04 AM -
Tapanui 'Flu liked Ravn's post in the thread Tapanui Flu.
New blog post For any NZ ME history buffs: One of the references mentioned (not for the main paper under discussion but a later one)...
Jun 14, 2024 at 10:01 AM -
FMMM1 liked Jonathan Edwards's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
@Ken Turnbull , I am wondering how reliable this test is as clinical information. Novak seems to have created this category of...
Jun 14, 2024 at 10:01 AM -
FMMM1 liked Jonathan Edwards's post in the thread Norwegian guidelines in development: help with a literature search.
I think it is simpler than that. There is no reliable evidence that any treatment works of ME/CFS.
Jun 14, 2024 at 9:59 AM -
livinglighter liked bobbler's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
“Do it on you own time please!” ?
Jun 14, 2024 at 9:59 AM -
livinglighter replied to the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
It sounds like to me what they are saying is, “Try not to have your seizures in front of people in case you find out they are actually...
Jun 14, 2024 at 9:59 AM -
Keela Too liked csinclair02's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
One has to wonder what it would have been like to be a fly on the wall at NIH. I can't imagine that Nath likes working with Walitt. But...
Jun 14, 2024 at 9:59 AM -
Keela Too liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I have learned the hard way over the decades that every time I think I might be going a little too hard on the ME-is-psychosomatic crowd...
Jun 14, 2024 at 9:59 AM -
FMMM1 liked Eddie's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
The sample size was so small that by hunting around in the data you could have found a way to support any number of hypothesis....
Jun 14, 2024 at 9:56 AM -
SNT Gatchaman liked Ravn's post in the thread Tapanui Flu.
New blog post For any NZ ME history buffs: One of the references mentioned (not for the main paper under discussion but a later one)...
Jun 14, 2024 at 9:52 AM -
livinglighter liked Sean's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
Sounds to me like what they are really saying is that it is everybody else who is inconvenienced and embarrassed by these seizures. So...
Jun 14, 2024 at 9:51 AM -
livinglighter liked MrMagoo's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
It’s much better to have a dissociative seizure alone at home, than in a workplace where others can summon medical attention. Obviously....
Jun 14, 2024 at 9:50 AM -
livinglighter liked rvallee's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
There is an odd part in the paper that talks about how based on this, it may be better to try to make the seizures less bothersome,...
Jun 14, 2024 at 9:50 AM
