Recent Activity
Activity stream for all registered members at Science for ME.
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bobbler liked Arnie Pye's post in the thread : TV casting call for people living with ME/CFS.
I've seen "Chronic Fatigue Syndrome" mentioned in the same sentence as "Anxiety" and "Depression" before. But this is the first time...
Jun 14, 2024 at 5:02 AM -
bobbler liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
I suspect it's both.
Jun 14, 2024 at 5:01 AM -
bobbler liked Lou B Lou's post in the thread : TV casting call for people living with ME/CFS.
That poster puts 'Chronic Fatigue Syndrome' right at the top of the list of conditions/diseases. That looks like an agenda.
Jun 14, 2024 at 5:01 AM -
MelbME replied to the thread Open Medicine Foundation (OMF).
It's not the features, it's the way they are tracked. We have the problem of reliability of a symptom experience being accurate based on...
Jun 14, 2024 at 5:01 AM -
Hutan liked MrMagoo's post in the thread Annual reviews for ME/CFS.
I know what I was trying to think of, but couldn’t. Emotional Labour? Mental load? Mental load is usually described as the...
Jun 14, 2024 at 5:01 AM -
Hutan liked Kitty's post in the thread Annual reviews for ME/CFS.
Just to go back to the question that started me on this train of thought: are people asked about capacity for work/ study/ etc in other...
Jun 14, 2024 at 5:00 AM -
Hutan liked Snow Leopard's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes, I'm a big fan of the 'give money directly to patients' as a control group option.
Jun 14, 2024 at 4:58 AM -
Sean liked Dolphin's post in the thread INIM May 2024 Conference Videos.
[IMG] Dear <<First Name>>, Missed the cutting-edge presentations from this year's INIM Conference? No worries! We're thrilled to...
Jun 14, 2024 at 4:55 AM -
Sean liked Ken Turnbull's post in the thread Different kinds of abnormalities of heart rate and blood pressure.
@rvallee , I'm not an expert, but in all the lectures and articles by "proper" autonomic experts, specialised exercise is recommended...
Jun 14, 2024 at 4:55 AM -
Hutan liked MrMagoo's post in the thread Annual reviews for ME/CFS.
Maybe there should be an annual review PROMS
Jun 14, 2024 at 4:54 AM -
Hutan liked bobbler's post in the thread Annual reviews for ME/CFS.
If those are trained well, and not from some guideline eg put together by Clare Gerada, then it gets around clinics being able to claim...
Jun 14, 2024 at 4:54 AM -
Trish liked Snow Leopard's post in the thread Nature: ‘It’s all gone’: CAR-T therapy forces autoimmune diseases into remission.
It is IgG and it is a substantial subset with antibodies against specific paranodal proteins. In any case, the efficacy is when there...
Jun 14, 2024 at 4:54 AM -
Hutan liked Kitty's post in the thread Annual reviews for ME/CFS.
First posts copied and others moved from UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS...
Jun 14, 2024 at 4:53 AM -
Hutan liked MrMagoo's post in the thread Annual reviews for ME/CFS.
Once a year review in primary care is the NICE recommendation...
Jun 14, 2024 at 4:53 AM -
Trish liked Lou B Lou's post in the thread Norwegian guidelines in development: help with a literature search.
@Lena Kjempengren - you may do well to make contact with Nina E Steinkopf https://x.com/Nina_Steinkopf https://melivet.com/ .
Jun 14, 2024 at 4:53 AM
