Recent Activity

Activity stream for all registered members at Science for ME.

  1. PhysiosforME liked Trish's post in the thread : TV casting call for people living with ME/CFS.

    Fantastic, thank you so much, @PhysiosforME

    Jun 14, 2024 at 2:39 PM
  2. Lou B Lou replied to the thread : TV casting call for people living with ME/CFS.

    Who could approach BACME and ask them if they are supporting this ill advised documentary venture that will be so harmful for pwme, and...

    Jun 14, 2024 at 2:39 PM
  3. PhysiosforME liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.

    Excellent email @PhysiosforME thank you

    Jun 14, 2024 at 2:38 PM
  4. Trish liked mango's post in the thread Covid-19 vaccines and vaccinations.

    I haven't had any covid vaccine yet but I can't go on self-isolating forever, obviously. Looks like the breaking point for me is coming...

    Jun 14, 2024 at 2:37 PM
  5. Lou B Lou liked Kitty's post in the thread : TV casting call for people living with ME/CFS.

    I think Jenny Wilson may have had it right in the tweet that @Lou B Lou posted—BACME. It's not a patient charity, of course, but the...

    Jun 14, 2024 at 2:35 PM
  6. EndME liked Lou B Lou's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal 'From harmful ‘therapies’ to social...

    Jun 14, 2024 at 2:34 PM
  7. EndME liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    Also direct them to Sean O'Neill from The Times. featured here on channel 4 news, he'd have a major story to tell i reckon M.E.: Lives...

    Jun 14, 2024 at 2:34 PM
  8. EndME liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    We need to be very careful that this isnt actually someone seeking to present the abuse as 'false abuse claims against drs/scientists'...

    Jun 14, 2024 at 2:34 PM
  9. Kitty replied to the thread : TV casting call for people living with ME/CFS.

    I think Jenny Wilson may have had it right in the tweet that @Lou B Lou posted—BACME. It's not a patient charity, of course, but the...

    Jun 14, 2024 at 2:34 PM
  10. EndME liked Aaron's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    No problem! I’ll send over the Monblot article and some of the other links and videos that have been contributed. Thanks!

    Jun 14, 2024 at 2:34 PM
  11. EndME liked Trish's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    You could also link them to this thread.

    Jun 14, 2024 at 2:34 PM
  12. EndME liked Trish's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    In situations like this, I think far better to provide links to people with expertise rather than risking getting facts wrong.

    Jun 14, 2024 at 2:34 PM
  13. EndME liked Lou B Lou's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    . https://me-pedia.org/wiki/Ean_Proctor Dr. Ann McIntire's Frontline Program about ME/CFS (Vintage VHS), 1990s? This documentary...

    Jun 14, 2024 at 2:34 PM
  14. EndME liked Trish's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    Jun 14, 2024 at 2:34 PM
  15. EndME liked Yann04's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    George Monbiot article is the only mainstream article I know of that property called out Wesseley.

    Jun 14, 2024 at 2:34 PM
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