Recent Activity

Trish liked Kitty's post in the thread Open Medicine Foundation (OMF).

In terms of symptoms, @MelbME, it may be useful to have some reference to time of day. I'm not sure quite what (can't think clearly at...

Kitty liked Trish's post in the thread Open Medicine Foundation (OMF).

@MelbME, are you planning to use any cognitive testing as part of your outcome assessments?

Kitty liked Trish's post in the thread Open Medicine Foundation (OMF).

I'm liking very much your development of ways to track changes and potential for use as outcome measures. I like the mix of the three...

Kitty replied to the thread Open Medicine Foundation (OMF).

In terms of symptoms, @MelbME, it may be useful to have some reference to time of day. I'm not sure quite what (can't think clearly at...

bobbler replied to the thread Annual reviews for ME/CFS.

yes you’ve reminded me how different it is to the last gp surgery. - I might be selling them slightly short but they seemed more focused...

Trish replied to the thread Open Medicine Foundation (OMF).

@MelbME, are you planning to use any cognitive testing as part of your outcome assessments?

Trish replied to the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.

@sarahtyson, in the hope that you are continuing to read and take notice of comments on this threadd, I would like to draw the attention...

Trish liked forestglip's post in the thread Open Medicine Foundation (OMF).

What metric(s) will you use to track how bad a patient's ME is? Edit: If it's not too expensive, maybe wearables could be incorporated?...

Trish liked MelbME's post in the thread Open Medicine Foundation (OMF).

Imagine if everyone with ME on this site had a significant work up before each treatment they tried during their journey so far and were...

Trish replied to the thread Open Medicine Foundation (OMF).

I'm liking very much your development of ways to track changes and potential for use as outcome measures. I like the mix of the three...

Lou B Lou liked Trish's post in the thread : TV casting call for people living with ME/CFS.

That is extremely concerning. I can't imagine the MEA, AfME or MEAction being so stupid. Even if they can find a member with ME/CFS who...

Lou B Lou liked Andy's post in the thread : TV casting call for people living with ME/CFS.

Action for ME on Twitter, "We have been made aware of & understand the concerns relating to the Electric Robin Docu Series & its...

bobbler liked Kitty's post in the thread Annual reviews for ME/CFS.

I agree that would be absolutely ideal, but I don't think it's realistic until we have trained ME nurses. For what it's worth, I've been...

Aaron posted a new thread.

BBC journalist has reached out asking for more info on ME patient abuse claims

I’ve been Tweeting alot about Wessely and his involvement in the Ean Proctor case and last night a BBC journalist and documentary...

Forum: General ME/CFS news