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Recent Activity

Activity stream for all registered members at Science for ME.

  1. Wyva replied to the thread Open Medicine Foundation (OMF).

    I can't speak for others, but I'm one of those people who feel worse after waking up. However, if the day is going to be a "bad" one, I...

    Jun 14, 2024 at 1:40 PM

  2. Turtle liked Andy's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.

    Now published, Assessing Functional Capacity in Myalgic Encephalopathy/Chronic Fatigue Syndrome: A Patient-Informed Questionnaire, open...

    Jun 14, 2024 at 1:39 PM

  3. Yann04 liked DigitalDrifter's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    I'm very severe and can't type much but here's something I wrote back in 2018 about my experience: I was sectioned on 20th August 2014...

    Jun 14, 2024 at 1:39 PM

  4. Yann04 liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    Also direct her to Sean O'Neill from The Times. featured here on channel 4 news, he'd have a major story to tell i reckon M.E.: Lives...

    Jun 14, 2024 at 1:39 PM

  5. DigitalDrifter replied to the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    I'm very severe and can't type much but here's something I wrote back in 2018 about my experience: I was sectioned on 20th August 2014...

    Jun 14, 2024 at 1:38 PM

  6. MeSci liked JemPD's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    We need to be very careful that this isnt actually someone seeking to present the abuse as 'false abuse claims against drs/scientists'...

    Jun 14, 2024 at 1:36 PM

  7. MeSci liked Trish's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    You could also link them to this thread.

    Jun 14, 2024 at 1:36 PM

  8. MeSci liked Trish's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    In situations like this, I think far better to provide links to people with expertise rather than risking getting facts wrong.

    Jun 14, 2024 at 1:36 PM

  9. MeSci liked Lou B Lou's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    . https://me-pedia.org/wiki/Ean_Proctor Dr. Ann McIntire's Frontline Program about ME/CFS (Vintage VHS), 1990s? This documentary...

    Jun 14, 2024 at 1:35 PM

  10. MeSci liked Trish's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    Opinion: ‘You don’t want to get better’: the outdated treatment of ME/CFS patients is a national scandal - George Monbiot

    Jun 14, 2024 at 1:35 PM

  11. MeSci liked Yann04's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    George Monbiot article is the only mainstream article I know of that property called out Wesseley.

    Jun 14, 2024 at 1:35 PM

  12. MeSci liked Aaron's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

    Hey Trish, thanks for replying so quickly! Oh that’s great. Yeah I wasn’t sure whether to attempt to just write some sort of summary...

    Jun 14, 2024 at 1:35 PM

  13. Joan Crawford replied to the thread Lancet - Medically unexplained symptoms explained.

    Paper https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(24)00700-1/fulltext Effectiveness of a symptom-clinic...

    Jun 14, 2024 at 1:35 PM
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