Recent Activity
Activity stream for all registered members at Science for ME.
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Jonathan Edwards replied to the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
The shift in plasma protein level is almost certainly part of a long term mechanism to re-adjust the blood volume needed for perfusion...
Jun 14, 2024 at 8:10 PM -
Trish liked Jonathan Edwards's post in the thread Good Days and Bad Days in Cancer Fatigue.
I have never asked in detail but my memory of patients on chemotherapy is that they would say 'I can handle it and I know it's worth it...
Jun 14, 2024 at 8:06 PM -
Trish liked Andy's post in the thread Open GEM study - Prevalence of genetic diseases in ME/CFS patients, 2022, Esther Crawley, Bristol University.
Absolutely, please do.
Jun 14, 2024 at 8:06 PM -
Jonathan Edwards replied to the thread Good Days and Bad Days in Cancer Fatigue.
I have never asked in detail but my memory of patients on chemotherapy is that they would say 'I can handle it and I know it's worth it...
Jun 14, 2024 at 8:06 PM -
Trish liked Joan Crawford's post in the thread Lancet - Medically unexplained symptoms explained.
I think you are correct in that it risks normalising making explanations up and rubber stamping this as OK. A much less energetic...
Jun 14, 2024 at 8:05 PM -
Trish liked Nightsong's post in the thread Lancet - Medically unexplained symptoms explained.
Here's a PDF for the Toussaint et al paper: link - the SEM was 2.3 for the PHQ-15m. The adjusted between-group difference was -1.82 (95%...
Jun 14, 2024 at 8:05 PM -
Trish liked ME/CFS Skeptic's post in the thread Lancet - Medically unexplained symptoms explained.
It's also a strange thing to study: whether making up an explanation for symptoms makes the patient feel less ill. I assume that the...
Jun 14, 2024 at 8:04 PM -
Trish liked NelliePledge's post in the thread Lancet - Medically unexplained symptoms explained.
As well as FND all psychosomatic efforts are post NICE 21 obviously going into promotion of MUS to reclaim the ground lost.
Jun 14, 2024 at 8:04 PM -
Trish liked Joan Crawford's post in the thread Lancet - Medically unexplained symptoms explained.
"GPs with an extended role spent substantial time actively listening to the participant describe their illness and proposing and...
Jun 14, 2024 at 8:04 PM -
Trish liked Joan Crawford's post in the thread Lancet - Medically unexplained symptoms explained.
"Although we excluded people with organic disease in the design of this trial....." Now there's a claim. Boom. (Apologies it's a...
Jun 14, 2024 at 8:04 PM -
Trish liked Joan Crawford's post in the thread Lancet - Medically unexplained symptoms explained.
I've scanned the paper and they mention fatigue, ibs and fibromyalgia. Cannot see ME/CFS specifically though it might be in there.
Jun 14, 2024 at 8:04 PM -
rvallee liked Lou B Lou's post in the thread Norwegian guidelines in development: help with a literature search.
@Lena Kjempengren - you may do well to make contact with Nina E Steinkopf https://x.com/Nina_Steinkopf https://melivet.com/ .
Jun 14, 2024 at 8:03 PM -
rvallee liked Jonathan Edwards's post in the thread Norwegian guidelines in development: help with a literature search.
I think it is simpler than that. There is no reliable evidence that any treatment works of ME/CFS.
Jun 14, 2024 at 8:03 PM
