Recent Activity
Activity stream for all registered members at Science for ME.
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SNT Gatchaman liked MelbME's post in the thread Open Medicine Foundation (OMF).
I think clinicians provide the first layer of evidence this is how trialling Rituximab and Ampligen came about. Then it comes down to a...
Jun 14, 2024 at 5:36 AM -
SNT Gatchaman liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).
So you are happy for the Lightning Process to be tried on everyone with ME/CFS based on reports of cure from Dr Garner's friends? You...
Jun 14, 2024 at 5:34 AM -
SNT Gatchaman liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I have learned the hard way over the decades that every time I think I might be going a little too hard on the ME-is-psychosomatic crowd...
Jun 14, 2024 at 5:31 AM -
Sean liked wingate's post in the thread ME & Chronic Illness Podcast: Post-Exertional Mayonnaise.
I've only just gotten through the intro of this episode but when he jokingly introduced Oonagh as an "anti-recovery activist" I lol....
Jun 14, 2024 at 5:27 AM -
Sean liked SNT Gatchaman's post in the thread ME & Chronic Illness Podcast: Post-Exertional Mayonnaise.
Oonagh Cousins & the dangers of the Lightning Process
Jun 14, 2024 at 5:27 AM -
Sean liked MelbME's post in the thread Comparison of measures of functional capacity and the way the questions are worded to take into account ME/CFS limitations.
I really like the FUNCAP. I think it's important to point out that they validated its use for a two week period. It is also really...
Jun 14, 2024 at 5:25 AM -
Sean liked rvallee's post in the thread Integrated care policy recommendations for complex multisystem long term conditions and long COVID, 2024, Banerjee et al.
The responses from one of the questionnaires:...
Jun 14, 2024 at 5:25 AM -
MelbME liked forestglip's post in the thread Open Medicine Foundation (OMF).
That's a really good idea. I've always hated trying to track my symptoms with just a 1-10 because two months later, I'll almost...
Jun 14, 2024 at 5:24 AM -
Sean liked rvallee's post in the thread Integrated care policy recommendations for complex multisystem long term conditions and long COVID, 2024, Banerjee et al.
And then there's this incredible lead nugget: You can't focus on LC while keeping ME/CFS out of scope. This is asinine and ignorant of...
Jun 14, 2024 at 5:24 AM -
Sean liked rvallee's post in the thread Integrated care policy recommendations for complex multisystem long term conditions and long COVID, 2024, Banerjee et al.
Integrated care policy recommendations for complex multisystem long term conditions and long COVID...
Jun 14, 2024 at 5:23 AM -
Sean liked forestglip's post in the thread Open Medicine Foundation (OMF).
That's a really good idea. I've always hated trying to track my symptoms with just a 1-10 because two months later, I'll almost...
Jun 14, 2024 at 5:22 AM -
forestglip liked MelbME's post in the thread Open Medicine Foundation (OMF).
It's not the features, it's the way they are tracked. We have the problem of reliability of a symptom experience being accurate based on...
Jun 14, 2024 at 5:21 AM -
Sean liked rvallee's post in the thread Preprint Clinical and Diagnostic Features of Post-Acute COVID-19 Vaccination Syndrome (PACVS), 2024, Mundorf et al.
Unless they dismiss the same idea with COVID infections, this is just weird. Says who? Because infection from many pathogens can do...
Jun 14, 2024 at 5:21 AM -
forestglip replied to the thread Open Medicine Foundation (OMF).
That's a really good idea. I've always hated trying to track my symptoms with just a 1-10 because two months later, I'll almost...
Jun 14, 2024 at 5:21 AM
