Recent Activity
Activity stream for all registered members at Science for ME.
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Fainbrog liked PhysiosforME's post in the thread : TV casting call for people living with ME/CFS.
We have emailed the TV company: Dear Janet, we are a research, education and advocacy group aiming to improve physiotherapy...
Jun 14, 2024 at 2:09 PM -
FMMM1 replied to the thread Measuring cerebral hypoperfusion with Doppler ultrasound.
possibly unrelated --- at best tangential --- the interest in cerebrospinal fluid & ME/CFS revolves around intracranial pressure - which...
Jun 14, 2024 at 2:09 PM -
LJord liked PhysiosforME's post in the thread : TV casting call for people living with ME/CFS.
We have emailed the TV company: Dear Janet, we are a research, education and advocacy group aiming to improve physiotherapy...
Jun 14, 2024 at 2:08 PM -
Joan Crawford liked DigitalDrifter's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
I'm very severe and can't type much but here's something I wrote back in 2018 about my experience: I was sectioned on 20th August 2014...
Jun 14, 2024 at 2:07 PM -
livinglighter liked Joan Crawford's post in the thread Lancet - Medically unexplained symptoms explained.
Commentary re newly published? trial on MUS in the Lancet. Silje Endresen Reme https://doi.org/10.1016/S0140-6736(24)01138-3...
Jun 14, 2024 at 2:05 PM -
forestglip liked Snow Leopard's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.
I remember there was someone on Twitter arguing that medical illnesses should be experimentally induced in medical doctors during...
Jun 14, 2024 at 2:02 PM -
forestglip liked Binkie4's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.
I think you can encourage the development of genuine empathy, not really " instill it " but promote its understanding and use in...
Jun 14, 2024 at 2:01 PM -
forestglip liked csinclair02's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
One has to wonder what it would have been like to be a fly on the wall at NIH. I can't imagine that Nath likes working with Walitt. But...
Jun 14, 2024 at 2:01 PM -
Joan Crawford liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
Excellent email @PhysiosforME thank you
Jun 14, 2024 at 2:00 PM -
Joan Crawford liked Trish's post in the thread : TV casting call for people living with ME/CFS.
Fantastic, thank you so much, @PhysiosforME
Jun 14, 2024 at 2:00 PM -
Joan Crawford liked PhysiosforME's post in the thread : TV casting call for people living with ME/CFS.
We have emailed the TV company: Dear Janet, we are a research, education and advocacy group aiming to improve physiotherapy...
Jun 14, 2024 at 2:00 PM -
livinglighter liked bobbler's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
As if drilling people to think they should avoid it and be embarrassed by it actually helps reduce it rather than adding psychological...
Jun 14, 2024 at 2:00 PM -
forestglip liked Ravn's post in the thread Tapanui Flu.
New blog post For any NZ ME history buffs: One of the references mentioned (not for the main paper under discussion but a later one)...
Jun 14, 2024 at 2:00 PM -
Joan Crawford liked Trish's post in the thread : TV casting call for people living with ME/CFS.
That is extremely concerning. I can't imagine the MEA, AfME or MEAction being so stupid. Even if they can find a member with ME/CFS who...
Jun 14, 2024 at 2:00 PM -
forestglip liked Andy's post in the thread Assessing Functional Capacity in [ME/CFS]: A Patient Informed Questionnaire [FUNCAP], 2024, Sommerfelt et al.
Now published, Assessing Functional Capacity in Myalgic Encephalopathy/Chronic Fatigue Syndrome: A Patient-Informed Questionnaire, open...
Jun 14, 2024 at 1:59 PM
