Recent Activity

Trish liked EndME's post in the thread How should we measure the “POT” of POTS, and how much does it matter?, 2023, Boris and Fischer.

How should we measure the “POT” of POTS, and how much does it matter? A century and a half ago, a number of Civil War soldiers were...

Lou B Lou liked MrMagoo's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.

In Ean’s MEpedia page there’s a good, sourced overview of S Wessely. Including M Williams. I agree the researcher doesn’t need to be...

Jonathan Edwards replied to the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

I agree. I was thinking of writing almost exactly the same post. So far nobody seems to have worked out a plausible mechanism of origin...

Trish liked Jonathan Edwards's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

That may be a good analysis. At present I am focusing on the issue of managing OI and potential cerebral hypoperfusion in the context...

Wyva liked Nightsong's post in the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.

This reference is to Nimnuan et al. Medically unexplained symptoms: an epidemiological study in seven specialties; I had a brief skim of...

Trish liked Jonathan Edwards's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

I think you may have misunderstood the context of what I said. As indicated to Hutan, I suspect things are complicated. I am quite...

EndME posted a new thread.

How should we measure the “POT” of POTS, and how much does it matter?, 2023, Boris and Fischer

How should we measure the “POT” of POTS, and how much does it matter? A century and a half ago, a number of Civil War soldiers were...

Forum: 'Conditions related to ME/CFS' news and research

Wyva liked Hutan's post in the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.

7837 people identified from GP records 891 excluded or not sent a participation pack - mostly due to the GP saying they aren't suitable...

Wyva liked Hutan's post in the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.

It looks as though harms were reported by participants, but I assume that if the participants stopped participating and weren't...

Wyva liked Hutan's post in the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.

Randomisation; masking A big deal is made of randomised allocation of people to the treatments. But that is rather insignificant when...

Trish liked Jonathan Edwards's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

That is what I would have predicted, but we don't have good evidence for the changes in cerebral perfusion reported on tilt table tests...

Trish liked SNT Gatchaman's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

Ditto here. My first symptoms were orthostatic/autonomic and I was very active. Onset after just having sailed 30NM doing all the rig...

EndME liked Jonathan Edwards's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

I think you may have misunderstood the context of what I said. As indicated to Hutan, I suspect things are complicated. I am quite...

Wyva liked Hutan's post in the thread Effectiveness of a symptom-clinic intervention ... multiple and persistent physical symptoms, 2024, Burton, Deary et al.

Introduction What nonsense - that a third of referrals from GPs to specialists is due to functional disorders and physical symptoms...

Hutan liked Jonathan Edwards's post in the thread Measuring cerebral hypoperfusion with Doppler ultrasound.

I think you may have misunderstood the context of what I said. As indicated to Hutan, I suspect things are complicated. I am quite...