Recent Activity
Activity stream for all registered members at Science for ME.
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forestglip replied to the thread USA: NIH National Institutes of Health news - next events May 28 2024.
Walter Koroshetz: "The patients with ME/CFS are incredibly frustrated by the lack of interest by physicians and taking care of them. So...
Jun 14, 2024 at 5:02 PM -
dave30th replied to the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
Who is the journalist? I'm happy to touch base with them as a fellow journalist if I have contact info.
Jun 14, 2024 at 5:02 PM -
dave30th replied to the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
I'd never seen this. Does anyone have any contact for Ean Proctor or have any idea where he is?
Jun 14, 2024 at 5:01 PM -
Lou B Lou liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
I don't think it's a terrestrial channel at all. In the casting call, it says 'for a major streamer'—so possibly Netflix, Amazon, Apple,...
Jun 14, 2024 at 4:54 PM -
rvallee liked bobbler's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
“Do it on you own time please!” ?
Jun 14, 2024 at 4:49 PM -
rvallee liked Sean's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
Sounds to me like what they are really saying is that it is everybody else who is inconvenienced and embarrassed by these seizures. So...
Jun 14, 2024 at 4:49 PM -
rvallee liked MrMagoo's post in the thread Reflections on the CODES trial for adults with dissociative seizures: what we found and considerations for future studies 2024 Stone, Carson, Chalder+.
It’s much better to have a dissociative seizure alone at home, than in a workplace where others can summon medical attention. Obviously....
Jun 14, 2024 at 4:49 PM -
Lou B Lou liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
Imagine the intersection of being fatigued by a very visible illness, and being marginalised because you’re black. Studies have shown...
Jun 14, 2024 at 4:48 PM -
ME/CFS Skeptic liked Joan Crawford's post in the thread Lancet - Medically unexplained symptoms explained.
Gobsmacking overconfidence. They do not demonstrate in any objective manner that they made a real world difference to anyone. Even...
Jun 14, 2024 at 4:47 PM -
Lou B Lou liked Trish's post in the thread : TV casting call for people living with ME/CFS.
Not any that have made their presence public, I think. Edit: I mean I'm not aware of any, public or privately.
Jun 14, 2024 at 4:47 PM -
Lou B Lou liked Trish's post in the thread : TV casting call for people living with ME/CFS.
Charity number: 1193035, registered in the UK. https://bacme.info/
Jun 14, 2024 at 4:47 PM -
Lou B Lou liked JemPD's post in the thread : TV casting call for people living with ME/CFS.
Would it be Sussex?
Jun 14, 2024 at 4:47 PM -
ME/CFS Skeptic liked Joan Crawford's post in the thread Lancet - Medically unexplained symptoms explained.
Commentary re newly published? trial on MUS in the Lancet. Silje Endresen Reme https://doi.org/10.1016/S0140-6736(24)01138-3...
Jun 14, 2024 at 4:47 PM
