Recent Activity
Activity stream for all registered members at Science for ME.
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Hutan liked Trish's post in the thread United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial.
Thanks, @adambeyoncelowe for that detailed and thoughtful response. I agree there's not point asking NICE to do anything further about...
Jun 15, 2024 at 12:45 AM -
Hutan liked adambeyoncelowe's post in the thread United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial.
Edit: Answered the wrong thing. Deleted most of my post and summarised the relevant parts to spare you all the eyestrain. For the...
Jun 15, 2024 at 12:44 AM -
Hutan liked Trish's post in the thread United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial.
This trial has been running for several years already. The lead researcher Chris Burton was on the NICE ME/CFS guideline committee....
Jun 15, 2024 at 12:43 AM -
Hutan liked bobbler's post in the thread United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial.
Errm - so are we at this stage thinking given the medical professional isn't mentioning they want to hear about 'the impact' this is...
Jun 15, 2024 at 12:42 AM -
Hutan liked Sean's post in the thread United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial.
negotiate explanations for symptoms If only my aunt had that option before the bowel cancer killed her. What utter garbage. Shame on...
Jun 15, 2024 at 12:39 AM -
Hutan liked rvallee's post in the thread United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial.
So, clearly performative "recognition" that is explicitly not recognition. It's the same old lying to patients in order to gain their...
Jun 15, 2024 at 12:39 AM -
Hutan liked Trish's post in the thread United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial.
I hope I never get sent to such a clinic. Reading between the lines, I'd say it's all the same old stuff about doctors pretending they...
Jun 15, 2024 at 12:38 AM -
lycaena liked Trish's post in the thread Online workshop: Clinical Trial Design in People with ME/CFS, 4th June 2024.
Is this normal in webinars like this, or is it specially inserted because of mythology about abusive pwME? It seems to me to be pretty...
Jun 15, 2024 at 12:38 AM -
Hutan liked Andy's post in the thread United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial.
Tucked away in supplementary materials,...
Jun 15, 2024 at 12:35 AM -
Hutan liked MEMarge's post in the thread United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial.
So, this PHQ basically asks "Are you bothered?" or rather "Over the last week have you been bothered by x" There are then 3 options:...
Jun 15, 2024 at 12:34 AM -
Deanne NZ liked Binkie4's post in the thread EDS and ME - is there a connection?.
Type 111 EDS, the only one of the 14 types not to have a genetic marker, until now. The paper also addresses the issue of...
Jun 15, 2024 at 12:33 AM -
Hutan liked Sly Saint's post in the thread United Kingdom: Multiple Symptoms Study 3 (ScHARR) - NIHR funded MUS treatment trial.
ah but thats the thing; they don't expect different results, and do everything they can to make it so.
Jun 15, 2024 at 12:32 AM -
Deanne NZ liked Robert 1973's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
Strongly agree. Remember too that Margaret Williams is a pseudonym. So unless it’s supported by reliable primary sources it is an...
Jun 15, 2024 at 12:32 AM -
Deanne NZ liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yeah Braincheck but any tests that assess executive function or processing speed are fine.
Jun 15, 2024 at 12:31 AM -
Deanne NZ liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yes it will be free for others to use once ready for release. We will beta test with patients very soon. Because of it's novelty we are...
Jun 15, 2024 at 12:31 AM
