Recent Activity
Activity stream for all registered members at Science for ME.
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Hutan liked Snow Leopard's post in the thread UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023.
Yes, I'm a big fan of the 'give money directly to patients' as a control group option.
Jun 14, 2024 at 4:58 AM -
Sean liked Dolphin's post in the thread INIM May 2024 Conference Videos.
[IMG] Dear <<First Name>>, Missed the cutting-edge presentations from this year's INIM Conference? No worries! We're thrilled to...
Jun 14, 2024 at 4:55 AM -
Sean liked Ken Turnbull's post in the thread Different kinds of abnormalities of heart rate and blood pressure.
@rvallee , I'm not an expert, but in all the lectures and articles by "proper" autonomic experts, specialised exercise is recommended...
Jun 14, 2024 at 4:55 AM -
Hutan liked MrMagoo's post in the thread Annual reviews for ME/CFS.
Maybe there should be an annual review PROMS
Jun 14, 2024 at 4:54 AM -
Hutan liked bobbler's post in the thread Annual reviews for ME/CFS.
If those are trained well, and not from some guideline eg put together by Clare Gerada, then it gets around clinics being able to claim...
Jun 14, 2024 at 4:54 AM -
Trish liked Snow Leopard's post in the thread Nature: ‘It’s all gone’: CAR-T therapy forces autoimmune diseases into remission.
It is IgG and it is a substantial subset with antibodies against specific paranodal proteins. In any case, the efficacy is when there...
Jun 14, 2024 at 4:54 AM -
Hutan liked Kitty's post in the thread Annual reviews for ME/CFS.
First posts copied and others moved from UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS...
Jun 14, 2024 at 4:53 AM -
Hutan liked MrMagoo's post in the thread Annual reviews for ME/CFS.
Once a year review in primary care is the NICE recommendation...
Jun 14, 2024 at 4:53 AM -
Trish liked Lou B Lou's post in the thread Norwegian guidelines in development: help with a literature search.
@Lena Kjempengren - you may do well to make contact with Nina E Steinkopf https://x.com/Nina_Steinkopf https://melivet.com/ .
Jun 14, 2024 at 4:53 AM -
Trish liked Jonathan Edwards's post in the thread Norwegian guidelines in development: help with a literature search.
I think it is simpler than that. There is no reliable evidence that any treatment works of ME/CFS.
Jun 14, 2024 at 4:53 AM -
Trish liked Jaybee00's post in the thread Norwegian guidelines in development: help with a literature search.
Let’s rephrase slightly. There are no RCT phase 3 trials for an intervention or drug, published or not, that have demonstrated a...
Jun 14, 2024 at 4:53 AM -
Trish liked Hutan's post in the thread Norwegian guidelines in development: help with a literature search.
Welcome to the forum, it's great to have you here. That's exciting news and good that the user organisations have a seat at the table....
Jun 14, 2024 at 4:52 AM -
bobbler liked wingate's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
I don't have experience with the kind of chair you're looking for. I do remember seeing that @Grigor has a chair that reclines nearly...
Jun 14, 2024 at 4:51 AM -
bobbler liked Binkie4's post in the thread Powered wheelchair that tilts for indoors and garden path UK.
I have a foldalite trekker which I am delighted with. It's not a large power chair nor is it small, somewhere in between. It comes in...
Jun 14, 2024 at 4:51 AM
