Recent Activity
Activity stream for all registered members at Science for ME.
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Hutan liked bobbler's post in the thread : TV casting call for people living with ME/CFS.
Yes. I read it as maybe they had a template and someone got tasked with listing non/non-visible disabilities and because of the olde...
Jun 14, 2024 at 5:41 AM -
Trish liked Snow Leopard's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.
I remember there was someone on Twitter arguing that medical illnesses should be experimentally induced in medical doctors during...
Jun 14, 2024 at 5:41 AM -
Hutan liked MrMagoo's post in the thread : TV casting call for people living with ME/CFS.
But exercise is good! Just because you can’t do it, or it makes you incredibly unwell isn’t a reason to slack off! I so wish I was a...
Jun 14, 2024 at 5:40 AM -
Hutan liked Kitty's post in the thread : TV casting call for people living with ME/CFS.
Blimey, they're clueless, aren't they? I'd question the professionalism of a company that can't even be bothered to read a few...
Jun 14, 2024 at 5:40 AM -
SNT Gatchaman liked MelbME's post in the thread Open Medicine Foundation (OMF).
Imagine if everyone with ME on this site had a significant work up before each treatment they tried during their journey so far and were...
Jun 14, 2024 at 5:39 AM -
Hutan liked Trish's post in the thread : TV casting call for people living with ME/CFS.
Thanks Joan. Very good reply.
Jun 14, 2024 at 5:39 AM -
Hutan liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
Dear Joan, I’m contacting you from Electric Robin, an award-winning UK-based creative production company. You can find out more about...
Jun 14, 2024 at 5:39 AM -
SNT Gatchaman liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).
I am interested to know how this method would work @MelbME. At present we do not know if any treatments are effective. If treatments...
Jun 14, 2024 at 5:39 AM -
SNT Gatchaman liked MelbME's post in the thread Open Medicine Foundation (OMF).
Yes this is a large scale project that we expect to take another 2-3 years to complete. The idea is to build an initial large dataset...
Jun 14, 2024 at 5:38 AM -
MelbME replied to the thread Open Medicine Foundation (OMF).
Very good points you raise. The slider isn't set 1-10, it is more like 1-100, so you could describe something at 55 and describe the...
Jun 14, 2024 at 5:38 AM -
SNT Gatchaman liked forestglip's post in the thread Open Medicine Foundation (OMF).
"Personalised Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients" [MEDIA] Description from YouTube:...
Jun 14, 2024 at 5:38 AM -
SNT Gatchaman liked MelbME's post in the thread Open Medicine Foundation (OMF).
I think clinicians provide the first layer of evidence this is how trialling Rituximab and Ampligen came about. Then it comes down to a...
Jun 14, 2024 at 5:36 AM -
SNT Gatchaman liked Jonathan Edwards's post in the thread Open Medicine Foundation (OMF).
So you are happy for the Lightning Process to be tried on everyone with ME/CFS based on reports of cure from Dr Garner's friends? You...
Jun 14, 2024 at 5:34 AM -
SNT Gatchaman liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I have learned the hard way over the decades that every time I think I might be going a little too hard on the ME-is-psychosomatic crowd...
Jun 14, 2024 at 5:31 AM
