Recent Activity
Activity stream for all registered members at Science for ME.
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Joan Crawford replied to the thread Lancet - Medically unexplained symptoms explained.
I've scanned the paper and they mention fatigue, ibs and fibromyalgia. Cannot see ME/CFS specifically though it might be in there.
Jun 14, 2024 at 5:43 PM -
rvallee liked Amw66's post in the thread NIH study - where to start?.
[MEDIA][ATTACH]
Jun 14, 2024 at 5:42 PM
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Lou B Lou liked MrMagoo's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
I would firstly reply to the researcher and ask her what is she looking for specifically? As there are several angles -abuse of children...
Jun 14, 2024 at 5:41 PM -
Lou B Lou liked dave30th's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
I'd never seen this. Does anyone have any contact for Ean Proctor or have any idea where he is?
Jun 14, 2024 at 5:41 PM -
Yann04 liked forestglip's post in the thread USA: NIH National Institutes of Health news - next events May 28 2024.
Anyone know who this is? First name might be "Asul". [ATTACH]
Jun 14, 2024 at 5:41 PM
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rvallee liked csinclair02's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
One has to wonder what it would have been like to be a fly on the wall at NIH. I can't imagine that Nath likes working with Walitt. But...
Jun 14, 2024 at 5:40 PM -
Lou B Lou liked dave30th's post in the thread BBC journalist has reached out asking for more info on ME patient abuse claims.
Who is the journalist? I'm happy to touch base with them as a fellow journalist if I have contact info.
Jun 14, 2024 at 5:40 PM -
rvallee liked Sean's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
I have learned the hard way over the decades that every time I think I might be going a little too hard on the ME-is-psychosomatic crowd...
Jun 14, 2024 at 5:40 PM -
rvallee liked Laurie P's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.
Jeannette said: But the issue wasn't that they didn't find POTS in the patients. The issue is that the healthy controls also had POTS.
Jun 14, 2024 at 5:39 PM -
MrMagoo liked Joan Crawford's post in the thread : TV casting call for people living with ME/CFS.
I have forwarded my two polite, informative emails that I sent to producer Janet Chute on Tuesday and Thursday to the Head of Television...
Jun 14, 2024 at 5:38 PM
