Recent Activity
Activity stream for all registered members at Science for ME.
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bobbler liked rvallee's post in the thread Sense about Science: Join our talks on science, scepticism and free speech (Garner et al).
Impressive jumble of selective memory and a very odd perspective on things. But I guess this explains why Cochrane has effectively shut...
Jun 14, 2024 at 4:35 AM -
Hutan liked Ken Turnbull's post in the thread Different kinds of abnormalities of heart rate and blood pressure.
I believe the type of hypovolemia that seems to occur in ME/CFS and POTS does not show up in standard blood tests because there is often...
Jun 14, 2024 at 4:35 AM -
Sean liked Yann04's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I looked it up and it seems for first offenders they get a warning. And then if they continue to not comply they can start getting large...
Jun 14, 2024 at 4:35 AM -
Sean liked Yann04's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
If you endorse a product through social media, your endorsement message should make it obvious when you have a relationship (“material...
Jun 14, 2024 at 4:34 AM -
Sean liked Yann04's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I was looking through US law and the FTC specifically states that influencers have to disclose financial relationships with brands they...
Jun 14, 2024 at 4:34 AM -
Trish liked Snow Leopard's post in the thread Sense about Science: Join our talks on science, scepticism and free speech (Garner et al).
No. If I sleep long enough, I do feel more rested, but never ever feel well.
Jun 14, 2024 at 4:34 AM -
Sean liked RaviHVJ's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
I have sent these photos to Dr Cefai. Going ahead with research that is not only so obviously flawed and biased but is also riddled with...
Jun 14, 2024 at 4:34 AM -
Trish liked Binkie4's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.
I think you can encourage the development of genuine empathy, not really " instill it " but promote its understanding and use in...
Jun 14, 2024 at 4:34 AM -
Sean liked Yann04's post in the thread 'Recovery Is Possible: Lessons in ‘ME/CFS’ Recovery from YouTube [Goldsmiths].
Just gonna provide pictures here so people don’t have to go onto reddit to see: [ATTACH] [ATTACH]
Jun 14, 2024 at 4:34 AM
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Trish liked Binkie4's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.
Or some omissions in their training. Surely it would be possible to include some empathy training?
Jun 14, 2024 at 4:34 AM -
Trish liked alktipping's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.
It is absolutely stunning that so many doctors have to experience disease symptoms before they find empathy for some patient groups...
Jun 14, 2024 at 4:34 AM -
Sean liked Caroline Struthers's post in the thread Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review.
Here's the latest correspondence with Cochrane. CEO Catherine Spencer wrote to me yesterday and I replied copying in COPE and...
Jun 14, 2024 at 4:34 AM -
Trish liked Snow Leopard's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.
He's lucky that he's able to work again... From the article: That is flat-out misinformation given the very high symptom and...
Jun 14, 2024 at 4:33 AM -
Hutan liked Mij's post in the thread Different kinds of abnormalities of heart rate and blood pressure.
Canadian Cardiovascular Society Position Statement on POTS syndrome and Related Disorders of Chronic Orthostatic Intolerance This novel...
Jun 14, 2024 at 4:33 AM -
Hutan liked darrellpf's post in the thread Different kinds of abnormalities of heart rate and blood pressure.
I've had high blood pressure since I was in my early 20s, now 65. When I look at symptoms, it is clear to me that my ME/CFS started...
Jun 14, 2024 at 4:33 AM
