Recent Activity

Activity stream for all registered members at Science for ME.

  1. Chezboo liked forestglip's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    The comparison is astounding: NIH chart: [ATTACH] Chart created from raw data (from blog): [ATTACH] And even if counting the little...

    13_Figure3a.png 17_AreaGraph_HardTaslkChoices.png 21_AverageRewaredsGramted.png Jun 14, 2024 at 6:51 AM
  2. Chezboo liked Colleen Steckel's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    While this is a very complex article covering the data, this quote sums it up nicely: "It is easy to see why the authors chose not to...

    Jun 14, 2024 at 6:50 AM
  3. Chezboo liked Binkie4's post in the thread Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al.

    Part 2 of Jeanette Burmeister's article on the NIH intramural study is posted on her blog. It is long and requires concentration to read...

    Jun 14, 2024 at 6:49 AM
  4. Chezboo liked alktipping's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.

    if you have to instil empathy into people via a course you get a fake insincere effect that patients will see through.

    Jun 14, 2024 at 6:44 AM
  5. Chezboo liked alktipping's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.

    It is absolutely stunning that so many doctors have to experience disease symptoms before they find empathy for some patient groups...

    Jun 14, 2024 at 6:44 AM
  6. Chezboo liked Snow Leopard's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.

    He's lucky that he's able to work again... From the article: That is flat-out misinformation given the very high symptom and...

    Jun 14, 2024 at 6:43 AM
  7. Chezboo liked Snow Leopard's post in the thread Guillain Barre Syndrome.

    Okay, so I have previously discussed how poor recovery to Guillain Barre Syndrome often leads to severe fatigue and ME-like symptoms...

    Jun 14, 2024 at 6:41 AM
  8. RedFox liked forestglip's post in the thread Still to open Immunoadsorption vs. Sham Treatment in Post COVID-19 Patients With Chronic Fatigue Syndrome, Hannover Medical School.

    This is now recruiting, in Hannover, Germany. "Does blood purification help against severe fatigue in post-COVID? Chronic fatigue...

    Jun 14, 2024 at 6:27 AM
  9. RedFox liked Binkie4's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.

    I think you can encourage the development of genuine empathy, not really " instill it " but promote its understanding and use in...

    Jun 14, 2024 at 6:27 AM
  10. RedFox liked Binkie4's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.

    Or some omissions in their training. Surely it would be possible to include some empathy training?

    Jun 14, 2024 at 6:27 AM
  11. RedFox liked alktipping's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.

    It is absolutely stunning that so many doctors have to experience disease symptoms before they find empathy for some patient groups...

    Jun 14, 2024 at 6:26 AM
  12. RedFox liked Snow Leopard's post in the thread EXCLUSIVE: Man, 32, becomes fully paralyzed within days of catching COVID due to rare syndrome.

    He's lucky that he's able to work again... From the article: That is flat-out misinformation given the very high symptom and...

    Jun 14, 2024 at 6:26 AM
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