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  1. Sean

    Miranda Hart - British comedian

    She has a BSc in cell biology from the University of Manchester. In which case she has no excuses.
  2. Sean

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    This. We have all seen how shameless and ruthless they are. The closer they get to losing their empires, reputations, status, incomes, etc, the more so they will become. It is difficult to start dealing with a thing until it is named, until it is made overt. And worse. ––––––––– And why is...
  3. Sean

    Cost-effectiveness of an extended-role [GP] clinic for [PPS]: results from the Multiple Symptoms Study 3 (MSS3)... 2024 Deary, Burton et al

    Exhibit 398941 for the prosecution in the case against the methodological and ethical standards in psychosomatics.
  4. Sean

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    That remains one of our most powerful tools at this stage. Getting stuff on the relevant public record, so nobody in the relevant positions of power can say they were not informed about the problem.
  5. Sean

    Illness invalidation and psychological distress in adults with chronic physical health symptoms 2024 Woldhuis and Gandy

    Exactly. Pointing anywhere and everywhere, except at the ongoing root cause of the problem.
  6. Sean

    Ignored, blamed, and sometimes left to die – leading expert ME explains origins of a modern medical ‘scandal’, Chris Ponting, The Conversation, 2024

    Surrounded by an electric fence that doctors and society insist is not there and that we are just imagining and inflicting upon ourselves. Which is about as onerous, cruel and totally unnecessary an additional burden to the disease itself as it is possible to come up with.
  7. Sean

    Illness invalidation and psychological distress in adults with chronic physical health symptoms 2024 Woldhuis and Gandy

    Has the medical profession ever considered stopping the invalidating? I mean that is where the problem started, and clearly is going to go right on coming from.
  8. Sean

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Never stopped IAPT being funded, despite a complete lack of meaningful results. None of this is science driven. It is all for political show and convenience. Which is why it fails.
  9. Sean

    United Kingdom: News from Forward-ME Group

    That is exactly what it is. The same old shit in a new hat. BACME, et al, are making it crystal clear that they are not going to reform in any meaningful way. We are staring down the barrel of another lost generation of lives, just so they can keep their jobs and egos intact.
  10. Sean

    Physical, cognitive, & social triggers of symptom fluctuations in people living with long COVID: an intensive longitudinal cohort study,2024,Greenwood

    This raises the question: should outcomes in long COVID studies be measured at rest/baseline or after cognitive or physical exertion? Both. It is the compare and contrast the provides the critical data. Also, might have missed it, but did not see the word convalescence or similar in there. For...
  11. Sean

    Review ENDOTEXT: CHRONIC FATIGUE SYNDROME, 2023, Lim & Torpy

    Cognitive behavioral therapy involves the provision of information and counselling to reduce the psychological impediments to recovery, as well as encouraging the patient to participate at an appropriate level of social and occupational activity. Because we are such incompetent fools with no...
  12. Sean

    What needs to change to ensure better care for people with ME/CFS with feeding difficulties?

    About 15-20 years ago a senior biomed researcher (can't remember who) said that the solution to ME/CFS is not scientific, it is political. Meaning the barriers to progress were more political than scientific. If there is no other option in life threatening situations then we have work with the...
  13. Sean

    Miranda Hart - British comedian

    She has gone the full Garner. :grumpy::grumpy::grumpy:
  14. Sean

    The Concept of ME/CFS

    This. At this point in time early diagnosis and being able to enter convalescence mode is the only tool we have to maximise the chances of substantial sustained improvement, let alone actual full recovery. The reason many of us end up so sick and disabled is precisely because our...
  15. Sean

    Review The effect of graded exercise therapy on fatigue in people with serious respiratory illness: a systematic review, 2024, Angela T. Burge et al

    The primary outcome was fatigue and secondary outcomes were health-related quality of life (HRQoL) and adverse events. The primary outcome and one of the two secondary outcomes are completely subjective, and the other secondary outcome is at least partly subjective, depending on how they...
  16. Sean

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    Robust methodology is a hard master. Monomaniacal in their proselytising, even. They are using the anti-dualism argument to assert a claim that it is all done by the brain.
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