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  1. Sean

    NHS bosses reject calls for specialist ME care, 2024, The Times (London)

    Dear healthcare workers You ain't the victims here. Stop your whining, and get on with facing up to and fixing the problem that is entirely of your making. The sooner you do that, the sooner the pain goes away for you. And for us. Yours etc Very long-term patient with completely trashed life...
  2. Sean

    NHS bosses reject calls for specialist ME care, 2024, The Times (London)

    Those opposed to reform still hold the reins.
  3. Sean

    Chronic fatigue syndrome and multiple sclerosis have reduced craniospinal compliance and dilated pressurized bridging cortical veins, 2024, G. Bateman

    Abstract Chronic fatigue syndrome (CFS) and multiple sclerosis (MS) share similarities regarding their epidemiology, symptomatology and craniospinal physiology. Indeed, the cardinal feature of CFS, fatigue, Stopped there.
  4. Sean

    Maeve Boothby O'Neill - articles about her life, death and inquest

    He did co-sign the pile of steaming dung that is the Anomalies paper not too long ago, and I have no doubt that there is a formal record of his current views on ME, as an NHS commissioner and general medical adviser bigwig, on the government files, which will become public one day. He is more...
  5. Sean

    UK: LBC phone in on ME 8pm, 24th August 2024

    "I have never had such a huge response to any hour that i've done... there is a big story here and there is an investigation that needs to happen." As I have been saying for years, there is a hell of a story here alright, one of the biggest in recent history. Just not the one the mainstream...
  6. Sean

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Me too. Unfortunately the patient community made it very clear at the time it was proposed that they strongly preferred ME. So here we are. :grumpy:
  7. Sean

    News from Scandinavia

    The best way to clear muddied waters is to simply stop stirring them up.
  8. Sean

    Maeve Boothby O'Neill - articles about her life, death and inquest

    As to the name, ME/CFS is the least worst option on the table for now.
  9. Sean

    Maeve Boothby O'Neill - articles about her life, death and inquest

    If not after all that, then what is it going to take? Is entrenched medical bigotry really going to win? Won't happen. There is no world in which Wessely will voluntarily give up being the centre of power and attention, and slip quietly into obscurity. It is simply not in his nature. He will be...
  10. Sean

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I agree that ME/CFS is inherently neither progressive nor fatal, if it is not mismanaged. And there's the rub.
  11. Sean

    News from Scandinavia

    Good start.
  12. Sean

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Look upon ye mighty works, O Psychosomatic Gurus, and its drearily predictable and appallingly cruel consequences for millions of sick, vulnerable, innocent patients. This is entirely your doing. You are the original cause of this catastrophe, and the ongoing roadblock preventing the urgent...
  13. Sean

    Subacute Combined Degeneration of the Spine: A Case Study of Delayed Diagnosis in the Emergency Department. 2024 Ryan and Tolby

    This. Psychosomatics, at least in its current form, has become a clear and present danger to all patients, and the entire health system. I wish I could get the rest of the health system to understand how much damage this crap is doing to their capacity to diagnose and treat promptly and...
  14. Sean

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    https://thesicktimes.org/2024/09/27...ence-claims-in-their-intramural-me-cfs-paper/ Excellent article. Thanks, John. :thumbup:
  15. Sean

    Preventing the risk of iatrogenic harm when assessing and diagnosing [FND]s and other functional somatic symptoms 2024 Stanghellini et al

    And they think we are the ones suffering from culturally generated perceptive disorders? They are lack of self-awareness personified.
  16. Sean

    Covid-19 vaccines and vaccinations

    It is important to protect oneself against blocked chimneys.
  17. Sean

    BBC Radio 4 programme featuring 'Functional Neurological Disorder' (FND)

    It is clear that a large chunk of the medical profession don't have a freaking clue about how much this FND lark is going to cost their reputations when the shit inevitably hits the fan.
  18. Sean

    BBC Radio 4 programme featuring 'Functional Neurological Disorder' (FND)

    Structural brain MRI features of patients with mixed FND were distinguishable from both healthy and psychiatric control participants, with subtype analyses showing high specificity (0.83) in accurately classifying individuals with functional motor disorder versus healthy controls. Again, if it...
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