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The Anomalies paper was published less than a year ago and it uses GET, and all three PACE PIs are authors on that paper. Or even deconditioned at all. There is simply no evidence that it is a primary feature of ME/CFS. Not on its own, certainly. But it has long been a core assumption in their...

Only 15% (11/75) reported that they had believed that their condition was related to physical deconditioning at baseline whereas 81% (61/75) believed this after treatment I have real trouble believing the researchers actually believe this is a practical meaningful result. Frankly, all it...

With M.E., the body’s systems are thought to have become poorly regulated and hypersensitive. The body is in a constant state of 'high alert', almost as if a switch has been thrown and the whole system is in a state of emergency. This is thought to be why the smallest of stressors such as noise...

Until they can't.

Excellent. Thank you. :thumbup: Another finding that does not fit the theory is that ME/CFS patients are not extremely deconditioned. I think this is one of the most interesting features and important clues about ME. We should, by all conventional understanding, be far more deconditioned than...

News to me. Meaningless nonsense. Yet, they then state: Nothing has changed. The BPS mentality still rules the roost.

personalised rehabilitation Anytime I hear those words my alarm bells starting ringing loudly. I mean, it's nice words and all, and I really hope they deliver. But the hard earned cynic in me will wait until I see the details of what they are going to do, and hear patient reports of what...

Not any more. They clearly hate and fear us, and are prepared to get us out of their clinics as fast as they can. This is exactly what is happening, and is why I often say that the BPS club could not have got away with what they have (and continue to do so) without sustained high level support...

This.

Yep, and they are doing exactly this with exercise too. Pretending it is just to help prevent secondary deconditioning, but really just using that as cover to impose it as a primary treatment, on exactly the same shitty pseudo-rationale as before.

+1. I think that psychosomatics, broadly defined as the belief in mind over matter, is the most insidious and destructive false idea of them all. In no small part because everybody, understandably, wants it to be true, and it manifests itself in myriad forms. But it is false. We are finite...

And what is the penalty, the disincentive, for getting wrong? Apparently not even patients dying seems to invoke any real concern in them about how they do things and treat us. I think it is entirely this now. Medicine – especially the UK branch, the original epicentre and still the...

I think it was @Peter Trewhitt who pointed out a while back that the basics of experimental psychology were figured out fifty years ago. The BPS club have completely failed to deliver a robust explanatory and therapeutic model by those standards, so they have simply downgraded standards until...

And don't want to, for the most part. A tube of chemicals.

I have sometimes wondered if there is a lateral axis component to ME/CFS.

Yep, need to wait for the September stuff.

The statements about ME/CFS being biological, potentially fatal, and in urgent need of competent adequate services, could be read as a legal warning to the medical profession to get its act together.

+1 Because it is important to know why there is a reduced and sometimes an absence of capacity for action, what is causing it. For both political reasons in dealing with psychs, and for scientific reasons in understanding and developing management and treatments. It is necessary to know if a...

While no doubt there are some good reasons to avoid naming diseases or syndromes after people (or places? i.e. pronouns), there are a couple of downsides to requiring a name to reflect some supposed distinguishing characteristic (symptom or cause): First, it biases perceptions, as we have seen...

Walz could be good for us.