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  1. Sean

    Could pacing be the "banana diet" of me/cfs? A prompt for a discussion

    Yep. Independent of whether it has long-term benefits for the underlying disease process*, it is still worth it for the short-term benefits of simply not feeling as shitty now, and usually, as that patient gets better at it over time, being able to function at least somewhat better at practical...
  2. Sean

    ME/CFS and Long Covid - Digging Deeper 7-8 May 2025 | Stavanger | Norway

    Not sure that is correct. (Not a criticism of biomedicine, as such. More a comment on them never being given a solid run at doing so.)
  3. Sean

    New article in the spectator mentions ME/CFS and death threats.

    The real story here, of course, is how unbelievably restrained the victims are under some of the most dishonest and cruel, and sometimes lifelong, provocations and abuses that can be dished out by medical authorities and the broader governance system that benefits from it and protects them from...
  4. Sean

    Preprint Indistinguishable mitochondrial phenotypes after exposure of healthy myoblasts to myalgic encephalomyelitis or control serum, 2025, Ryback et al

    Feels to me more like a problem with trying to use energy. The difference between a battery not being charged, and it being charged but there being a break in the cable connecting it to the rest of the circuit.
  5. Sean

    ME/CFS and Long Covid - Digging Deeper 7-8 May 2025 | Stavanger | Norway

    The basic principle of BPS is nothing more than the foundational scientific principle of taking into account all relevant significant causal factors to explain a phenomenon. It is a truism that nobody could object to. It is not a justification for unproven claims about causation within that...
  6. Sean

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    RFK Jr has just fired the entire CDC vaccine advisory panel, stating that he wants to reestablish public trust in the health system. That would be the trust he spent his life doing a comprehensive smear and demolition job on. Will probably appoint Andrew Wakefield as the replacement for the...
  7. Sean

    News from The Netherlands

    It is not patients who are behaving like anti-vaxxers.
  8. Sean

    News from the USA, United States of America

    Long COVID is best considered as a group of infection associated conditions requiring developing research studies and treatment trials that address the inherent heterogeneity. I think we just don't know enough to be confident about that. I don't see a fatal flaw with the alternative...
  9. Sean

    Heat vs. Fatigue: Hyperthermia as a Possible Treatment Option for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2025, Hochecker

    To qualify my previous comment a bit. I do find some heat (particularly a hot shower) good for relaxing and soothing aching muscles. But it can be draining if you overdo it. It is a balancing act.
  10. Sean

    News from The Netherlands

    Excellent article. Thank you. :) Because if they did they would be opening themselves to massive lawsuits. They know that. They do not have the courage of their convictions. It is bluff and bluster, and arrogance and dishonesty, and cowardice all the way down. As always. ––––––––– Find...
  11. Sean

    Bristol Chronic Fatigue Syndrome/ME Service; Bristol M.E. Service - Peter Gladwell

    That is what happens when patients are better informed about the tripe you are selling.
  12. Sean

    The ELAROS NHS digital system for patient/clinician digital sharing questionnaire data, includes Yorkshire Rehab. Scale and Open-OH app

    In fairness, they have solved how to keep profiting off our suffering. Quite successfully, apparently. :grumpy:
  13. Sean

    I'm able to exercise but am still disabled

    It would be surprising if ME/CFS did not bring with it some increased risk for getting various other conditions. And vice-versa.
  14. Sean

    Heat vs. Fatigue: Hyperthermia as a Possible Treatment Option for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2025, Hochecker

    Speaking as a lifelong dweller in the tropics. No, this is not the answer. Overheating is one of the worst things I know of.
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