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Long been my view that a much more careful and comprehensive (and unprejudiced) examination of the mechanical aspects of ME/CFS bodies and their functioning (or lack of it), with a particular eye on non-linearity, might find some good basic clues. It is arguably the most under-investigated...

Gets about, doesn't he.

But its absence is.

It certainly is. One the most important and under appreciated clues about ME/CFS is that we are not much more (classically) deconditioned, and that we can be more active as soon as we feel better, without having to re-condition. By all conventional understanding we should be much more...

:thumbsup:

Point taken. My interest in this is that if a prodromal phase exists and can be identified, that opens the possibility of intervening much earlier, with better management if nothing else for now, to prevent it expanding into the full blown state, or reduce the consequences if it does. At least...

If Long Covid can occur in infants, then it needs to be considered for ME/CFS. https://www.s4me.info/threads/characterizing-long-covid-symptoms-during-early-childhood-2025-gross-et-al.44351/

I suspect a similar story for me. It may be that the cognitive component of ME/CFS and its consequences are dominate during a pro-dromal phase, which would skew interpretation from the start, including not even realising there is any health problem at all. Then, if it later becomes the full...

Which might, in part at least, explain why there seems to be a low rate of onset in the first 10 years of life.

:D I think these are two observations that we need to keep an open mind on. In particular the possibility that there might be a long pro-dromal phase for many, and that some may never progress beyond that phase while still experiencing a subtle and unrecognised but still practically...

"structured water" That would be ice.

For those who don't know, that was what he had engraved on his headstone. Me too. Body-wide pain was there from day one, and the more I push myself, the sicker I get, and the worse the pain gets. Never less than a dull background roar, and usually more than that, sometimes very nasty indeed...

There will come a day when their work, particularly the quotes they have compiled from Wessely and others, will be of great value in the accountability process. It will save the rest of us a huge amount of work.

Not to mention covering their own arses.

The BPS club have made much of the distinction between illness and disease over the years, especially earlier on. It is one of their foundational arguments for claiming no organic (primary) pathology. You know, the ol' dualism they claim to be battling. At the practical survival level, at...

This is one change I fully support. The poverty trap is very real. I have not checked the rules for a while, but in Australia at least it also applies to other aspects of your life, not just employment status. It is also affected by relationship status, and often in a fairly punitive way that...

MW's work is a mixed bag. Some excellent info and points and references in there. Best used selectively, and as source for other sources. Generally I would not cite them directly. That said, I am grateful to them for their work. No doubt it is not fun to have to go through it all. Like all...

"Chronic Fatigue Syndrome" Not a good start. Summary: Exercise doesn't deliver meaningful sustained benefits, therefore we must do more research into exercise.

I was not sure what gender I was at first, but then I transitioned to male and have been quite satisfied ever since. [biology joke]

:laugh: Silly man. Everybody knows parsnips have to be roasted to activate their therapeutic properties. :rolleyes: