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  1. Sean

    Internal tremors and vibrations in long COVID: a cross-sectional study, 2023, Zhou, Iwasaki et al.

    More basic biomechanical studies please, at all scales, micro to macro. For a disease featuring difficulty in movement it is surprising and more than a little disappointing that so little attention has been paid to how the body is behaving biomechanically, how it is handling both internally...
  2. Sean

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Cult thinking never does. That is one of its most required and distinguishing features. What about cognitive activity, including emotional and social interaction?
  3. Sean

    Preprint Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206, 2024, Edwards (Qeios)

    Nor required in conjunction with feeding. Spreading the blame game. Not entirely clear to me what the distinction is between them. Maybe just call it biological or biophysical. Covers structural and physical.
  4. Sean

    Maeve Boothby O'Neill - articles about her life, death and inquest

    And they have gall to accuse us of being stuck in rigid stereotypical thinking? It is beyond parody. Very good question. It is the perfect excuse mechanism. Nobody can disprove it. Even if a full biological explanation and cure is found they will still claim there is a 'functional overlay', to...
  5. Sean

    Maeve Boothby O'Neill - articles about her life, death and inquest

    The standard shameless sophistry and lying they have been indulging in since forever.
  6. Sean

    Maeve Boothby O'Neill - articles about her life, death and inquest

    Big thanks to all those reporting from the proceedings.
  7. Sean

    Maeve Boothby O'Neill - articles about her life, death and inquest

    I wonder at what point do the non-ME specialists at the clinical coalface start turning their critical gaze on the senior BPS school ME 'experts' who have polluted the medical system with all this psycho-drama morality-play nonsense. If they think it is a tough ask to have to confront their...
  8. Sean

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Exactly. If it is no big deal then at the very least he should withdraw and rewrite the paper to make it clear to all. I have no delusion that Walitt himself has seen the error of his ways. It is only via shining a light on this crap that anything is being done about it.
  9. Sean

    issue of 'chronic fatigue' without the syndrome being used by media and others and probably pwme

    If even Wikipedia can get that bit right – and to their credit they have for a long time now – then nobody else has the excuse not to.
  10. Sean

    Review Functional neurological disorder, physical activity and exercise: What we know and what we can learn from comorbid disorders 2024 Boylan et al

    It is so blatant, isn't it. We are way past the point where they can claim plausible deniability. They are just compounding the already serious damage to their own reputations.
  11. Sean

    National Autistic Society says media reports on an autism cure study are ‘deeply insulting’

    They seem completely oblivious to the profound damage they are doing to their own reputations. As I have said before, trust is the single most important element of the clinical encounter and relationship. Lose that and it is all over.
  12. Sean

    Machine learning classification of functional neurological disorder using structural brain MRI features 2024 Westlin, Perez et al

    Because nobody with authority over them is calling them out on it. This problem goes way deeper than a handful of rogue players in one small area of medicine.
  13. Sean

    David Tuller Crowdfunding starts May 1st 2024

    I had one too. Was our Dave, far as I can tell. Used a berkeley.edu email address. But he can confirm that. @dave30th
  14. Sean

    Working knowledge, uncertainty and ontological politics: An ethnography of UK long covid clinics, 2024, Greenhalgh et al

    They have gone rogue on methodology and ethics, and become a law unto themselves. And did it in full public view. There has to be an intervention from the rest of science. Medicine is clearly not going to stop them. Whether it chooses not to, or is incapable of it, doesn't matter any more. The...
  15. Sean

    Preprint Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206, 2024, Edwards (Qeios)

    Same as safety training. Awareness of the problem is not enough, the system, the structure, the culture, has to be biased heavily in favour of it.
  16. Sean

    A Descriptive Diagnosis or a Causal Explanation? Accuracy of Depictions of Depression on Authoritative Health Organization Websites, 2024, Valtonen+

    It is not known whether this logical error, a form of circular reasoning, can sometimes be mistakenly reinforced by health authorities themselves. Leading professional medical and psychiatric organizations commonly confound depression, a descriptive diagnostic label, with a causal explanation...
  17. Sean

    Determining the societal value of a prospective drug for ME/CFS in Germany, 2024, Afschin Gandjour

    But can be safely assumed to not be insignificant.
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