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  1. JaneL

    "Answer to IBS is in the mind" - media coverage of new Chalder/Moss-Morris trial

    I believe both of these types of cheese are typically made from unpasteurised milk which might be relevant...
  2. JaneL

    Don't merge the assessments for PIP and ESA - April 2019

    Well i’m certainly not a millionaire and I don’t have offshore accounts! But I do have family that I lean upon for financial support if necessary (and have done in the past) throughout the long appeals process. I realise I’m very fortunate in this respect and many will not be in this position...
  3. JaneL

    "Answer to IBS is in the mind" - media coverage of new Chalder/Moss-Morris trial

    Why is too much cooked cheese bad for an irritated gut? Is it because important digestive enzymes present in the cheese are destroyed by the heat during cooking? Or something else? And why is it always the most delicious foods that seem to cause the most problems? :( Just thinking about...
  4. JaneL

    Don't merge the assessments for PIP and ESA - April 2019

    Is it just me that actually likes the idea of having these two assessments merged? Half as many forms to fill in, half as many face-to-face assessments, half as many potential mandatory reconsiderations, appeals and tribunals to endure... :thumbup:
  5. JaneL

    Evidence of Clinical Pathology Abnormalities in People with ME/CFS from an Analytic Cross-Section (2019) Nacul et al.

    Link to the full paper https://res.mdpi.com/diagnostics/diagnostics-09-00041/article_deploy/diagnostics-09-00041.pdf?filename=&attachment=1
  6. JaneL

    Evidence of Clinical Pathology Abnormalities in People with ME/CFS from an Analytic Cross-Section (2019) Nacul et al.

    They did pick up on this in the paper: My bolding. I’m unsure why they say it remains only a possible ‘partial’ explanation and why this couldn’t potentially provide a full explanation for the differences in CK levels?
  7. JaneL

    Evidence of Clinical Pathology Abnormalities in People with ME/CFS from an Analytic Cross-Section (2019) Nacul et al.

    I’m not sure they did a very good job of ‘adjusting for’ activity levels which were based on subjective reporting: I can imagine for example that the activity level of a healthy control answering “not active at all” would likely be vastly greater than a severe ME patient who put themselves in...
  8. JaneL

    Evidence of Clinical Pathology Abnormalities in People with ME/CFS from an Analytic Cross-Section (2019) Nacul et al.

    I had a really low CK reading of just 10 (in the ‘abnormal’ range) in the year that I was diagnosed with ME which was probably when I was at my worst.
  9. JaneL

    Gary Burgess - The ME show, and updates about Gary's health.

    Thank you @Gary Burgess for another fantastic series. And seriously well done for breaking the 30,000 downloads barrier! Amazing! It’s good to know that your podcasts are reaching such a wide audience. You mentioned at the end of your last podcast that the ME show will be back which is great...
  10. JaneL

    Podcast: "It's Not All About ME"

    Thank you so much @Itsnotallaboutmepodcast for these podcasts and @JohnTheJack for this latest interview. I was in the process of transcribing exactly the same excerpts that @Michiel Tack posted above, but he beat me to it! Those bits of the interview really resonated with me too. You really...
  11. JaneL

    Springtime sleepiness - pollen or coincidence?

    Ah I see, interesting! It sounds like a positive thing then if you feel better after all the extra rest, that’s good to hear. :)
  12. JaneL

    Springtime sleepiness - pollen or coincidence?

    Sorry to hear that @andypants. :( If it is pollen causing your symptoms, would it be worth trying an air purifier to see if that helps? I hope it doesn’t last too long. :hug:
  13. JaneL

    What's behind ME allergies and sensitivities to foods, odors and chemicals?

    Also this: Increased Risk of Chronic Fatigue Syndrome Following Atopy: A Population-Based Study. Yang TY1, Kuo HT, Chen HJ, Chen CS, Lin WM, Tsai SY, Kuo CN, Kao CH. Abstract Several hypotheses have been proposed to explain the etiopathogenesis of chronic fatigue syndrome (CFS), including...
  14. JaneL

    What's behind ME allergies and sensitivities to foods, odors and chemicals?

    There is also this paper: Allergy and the chronic fatigue syndrome Stephen E. Straw, MD, Janet K. Dale, RN, Ralph Wright, RN, and Dean D. Metcalfe, MD Bethesda, Md. Journal of Allergy and Clinical Immunology 1988 May;81(5 Pt 1):791-5. https://www.jacionline.org/article/0091-6749(88)90933-5/pdf...
  15. JaneL

    The right to record medical consultations - UK and other countries

    UK patients have the right to record NHS appointments (including covertly) I just wanted to make people aware that it is well within their right to record NHS appointments (or any interactions with NHS staff). This right extends to interactions with NHS staff in the social care setting. I...
  16. JaneL

    SMILE trial data to be released

    Wow this is a really big deal! Thanks so much for persevering with this @JohnTheJack. Brilliant stuff :thumbup:
  17. JaneL

    Gary Burgess - The ME show, and updates about Gary's health.

    Thanks @Gary Burgess for another great interview! It was a really good listen and I especially appreciated hearing how optimistic the Countess of Mar sounded regarding the NICE guideline review. :thumbup:
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