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https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1371754/ Abstract In order to examine the prevalence of patients with symptoms fulfilling the criteria for the chronic fatigue syndrome an extensive survey was carried out of general practitioners on 10 local government lists in two health boards...

I don't agree with everything in this paper, but it's a lot closer to being accurate than many more recent papers.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1371214/ Abstract A case definition for post-viral fatigue syndrome is proposed within which various subgroups of patients exist. Any one treatment may not apply to all the subgroups. In particular, patients' experiences do not show that avoidance of...

A NICE guideline recommends the use of acupuncture for chronic pain, suggesting there is strong evidence for efficacy. So, quick assumptions about the capability of a NICE committee to get things right, might be wrong.

It certainly is useful in helping us understand what is going on. And worrying, because if there is a rethink of the Evidence Review, then that would destroy the main advance of the whole guideline process. At least we know better what we are up against.

My son and I get this. My son in particular can get the most dramatically coloured feet - one half completely white and one half red-purple. I am not so sure. I guess it depends how common Raynaud's is.

In our conversation with @Hilda Bastian, she made it clear that the move to subjective measures involving patient reports was seen as a very good thing by consumer advocates - perhaps they even asked for them. It was seen as 'listening to the patient'. It just seemed that they did not give...

I've just quickly skimmed this, but I thought it was good, and better than I was expecting. Especially being published in the Mayo Clinic Proceedings, given that the Mayo Clinic has not been a good place for a person with ME/CFS to get care. I think it's worth looking beyond the abstract; it...

Further on the Austrian Society for ME/CFS, the bits of that website I have seen look very good. There's information for doctors, research summaries, a record of media articles... There's a very recent report:

That's an interesting site, sympathetic to people with ME/CFS and mostly accurate. e.g. There are potentially useful links, including to the Austrian Society for ME/CFS.

The most annoying thing about this article, beating even the language that is used, is this idea of Long Covid being a 'new illness'. Putting the idea of Long Covid being an umbrella term for various sorts of post-infection issues aside for a moment, "post-infection syndromes that look like...

There are some body politics tweets from the conference discussed here: Oxaloacetate Structural spinal problems and ME - blogs and social media

We now have a thread for news from the 2021 conference here: IACFSME 2021 Virtual Conference

An advocacy project related to NICE's paused ME/CFS guideline is discussed here: 2021 UK: ME Association - NICE and the unpublished ME/CFS guideline - contact your MP

So, the hypothesis is that hypoxanthine is increased. The McGregor study associated lower hypoxanthine with PEM. And Andy tells us this one found lower hypoxanthine in pwME. It's interesting. Hopefully the study will tell us more. Possibly it will take some careful stratification of...

For those with visual issues, the Bodypolitic tweets in vsou's post are #135, as above in the first post of the thread #136 80% of participants show improvement. This is remarkable, he says. Dr Kaufman said patients speak of improvement in overall wellbeing and some describe brain fog...

The ICD-10-CM initiative is discussed further here 2021 US ICD-10-CM change proposal: addition of code for ME/CFS

The ICD-10-CM initiative is discussed further here 2021 US ICD-10-CM change proposal: addition of code for ME/CFS

The ICD-10-CM initiative is discussed further here 2021 US ICD-10-CM change proposal: addition of code for ME/CFS

Posts discussing oxaloacetate as a treatment have been moved to Oxaloacetate