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We have a thread here: Neutrophil Extracellular Traps

'Reporting a clinical benefit' and 'actually showing a clinical benefit' are two quite different things. When I see something that I actually know something about, something like this, where the facts are misrepresented, it makes me wonder how many other points in the paper are wrong. CoQ10 -...

Yes, as it probably is in adults (going by the Dubbo study and studies of Long Covid). I wonder if the idea that children and young people are particularly likely to recover is in part due to the fact that most people getting EBV are young people, and EBV is a particularly obvious and...

I don't think those decision makers would need to know anything about the Lightning Process or psychology to know it was not a good study to allow. The fact that there were no controls should have been enough. And the fact that outcomes were self-report surveys in an open-label study should...

It's a shame these studies have variable follow up times (1 to 5 years in this case). It also matters how long the young people have had ME/CFS before being seen - some young people will have recovered before getting near the 'tertiary referral service'. Perhaps those things are addressed in...

Just bumping this. Does anyone have any idea how many people have signed up to the response?

I think the possible (income protection/permanent disability) insurance company connection (and it's just speculation) is that if CBT and GET are said to work, then the suggestion is that there is a treatment. So, the insurance companies can require people to do the various treatments before...

I actually got myself quite worked up over this, which I guess is silly, because these authors probably just slapped this piece of patient-blaming twaddle together, added another publication to their tally and blithely moved on to write prejudiced ignorant nonsense about something else...

If I tried to write a parody of BPS thinking, I know I could not do as well as these people have in their abstract. It's worth celebrating these people here: Bert Lenaert Yannick Boddez Johan W.S.Vlaeyen Caroline M.van Heugten from Maastrict University in the Netherlands, and the University...

I haven' t read all of the ME Action response yet, but the above gives an idea of its content. I've signed to support the response (which people should be aware is still evolving as they get feedback). I think it's important that the CDC gets a clear message. Given the previous gains in the...

https://www.rnz.co.nz/programmes/the-detail A Radio New Zealand item on Long Covid (12 August) - 22 minutes. I just caught the end of it live, but it's here on podcast. There's some information about some research being done.

What's that, Alex? Mentions ME/CFS: Reference 29 Insights from Invasive Cardiopulmonary Exercise Testing of Patients with ME/CFS, 2021, Joseph et al

In response to authors of other studies concluding that the Long Covid people are just deconditioned: EO2 = systemic oxygen extraction CO = cardiac output

I was wondering how an Apple Watch estimated Vo2, and found this https://www.apple.com/healthcare/docs/site/Using_Apple_Watch_to_Estimate_Cardio_Fitness_with_VO2_max.pdf That's quite a large potential drop in Vo2max in a short time that is seen in normal people in response to reduced activity...

Nathan Butler, who runs a substantial exercise therapy business in Melbourne, was involved in the PACE trial, delivering GET. When I first became ill in 2013, the clinic's website proudly noted the link. When I looked some years later, there was no mention of the trial at all. :) (I see...

Copied post - more here Nathan Butler, who runs a substantial exercise therapy business in Melbourne, was involved in the PACE trial, delivering GET. When I first became ill in 2013, the clinic's website proudly noted the link. When I looked some years later, there was no mention of the trial...

To the contrary: 'are you perhaps complaining more than I might expect a person with a javelin injury to complain? Yes? FND 'did you perhaps not take appropriate precautions when chainsawing? Yes? then perhaps not FND, but certainly self-harm' - and mental health issues definitely co-occur...

different degrees of dreadfulness - :rofl: - perhaps Chalder can supply a scale for that. satistically significant improvements - is that a cross between statistically and sadistically significant improvements? seems very appropriate.

The discussion about some of the papers I have looked at is not reassuring. For example work in 2015 by the Castro-Marrero team on CoQ10 is discussed here; CoQ10 - Coenzyme Q10 (A more recent study by the same team further illustrates the problems with their studies - Effect of Dietary...

Katherine Hall is not a student producing a Masters thesis by interviewing 12 people and writing up the themes. She is a senior lecturer in the Otago University Department of General Practice and Rural Medicine. She is also someone with an interest in ME/CFS. For example, she was a co-author...