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Advocacy Action Alerts

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  1. Midnattsol

    2025: Survey on the draft protocol for the cancelled update of the 2019 Cochrane ME/CFS Exercise Review

    Midnattsol, Mar 14, 2025
    Replies:
    7
    Views:
    944
    Trish
    May 8, 2025 at 11:33 AM
  2. Yann04

    [Recruiting Research] Disabled People’s Experiences with Physical Activity

    Yann04, May 6, 2025
    Replies:
    6
    Views:
    246
    PrairieLights
    May 6, 2025
  3. Midnattsol

    Call for papers - Amplifying Marginalized Voices: conducting health services research by or with marginalized communities

    Midnattsol, Mar 13, 2025
    Replies:
    2
    Views:
    285
    bobbler
    Mar 14, 2025
  4. ahimsa

    From Solve ME/CFS - Tell your Senators to VOTE NO on proposed 57% cut to Research Programs (USA)

    ahimsa, Mar 12, 2025
    Replies:
    0
    Views:
    173
    ahimsa
    Mar 12, 2025
  5. hackorbee

    NIH Seeks Public Feedback on Strategic Plan for Disability Health Research (FY26-FY30)

    hackorbee, Mar 7, 2025
    Replies:
    0
    Views:
    238
    hackorbee
    Mar 7, 2025
  6. Jaybee00

    Very severe French patient needs help

    Jaybee00, Mar 3, 2025
    Replies:
    8
    Views:
    499
    RainbowCloud
    Mar 4, 2025
  7. ahimsa

    Reddit Q&A session about #MEAction Medical Flashcards on Monday, Feb. 24, 2025

    ahimsa, Feb 22, 2025
    Replies:
    1
    Views:
    584
    Hutan
    Feb 22, 2025
  8. Yann04

    Media Opportunities

    Yann04, Feb 2, 2025
    Replies:
    4
    Views:
    510
    Yann04
    Feb 19, 2025
  9. Yann04

    The Guardian: Share your experience of long Covid

    Yann04, Jan 17, 2025
    Replies:
    1
    Views:
    340
    Ash
    Jan 17, 2025
  10. ahimsa

    Support Keeping Telehealth – Take Action Today! (#MEAction, USA)

    ahimsa, Dec 14, 2024
    Replies:
    0
    Views:
    257
    ahimsa
    Dec 14, 2024
  11. Braganca

    Tell the New York Times about ME

    Braganca, Feb 2, 2024
    Replies:
    2
    Views:
    983
    wingate
    Feb 5, 2024
  12. Amw66

    A UK father on Twitter looking for experiences of harms from medical care for POTS, EDS and MCAS

    Amw66, Oct 24, 2023
    Replies:
    2
    Views:
    724
    Amw66
    Oct 24, 2023
  13. Adam pwme

    Very Severe ME - Photo Request

    Adam pwme, Jul 29, 2023
    Replies:
    2
    Views:
    859
    Hutan
    Aug 2, 2023
  14. ahimsa

    USA: Ask your Members of Congress to support the CARE for Long COVID Act! (from Solve M.E.)

    ahimsa, Apr 17, 2023
    Replies:
    1
    Views:
    1,015
    ahimsa
    Apr 18, 2023
  15. Laurie P

    USA: Urge the Social Security Administration to Allow SSI Recipients to Receive Help with Groceries without a cut in Benefits. Act by April 17, 2023.

    Laurie P, Apr 5, 2023
    Replies:
    0
    Views:
    835
    Laurie P
    Apr 5, 2023
  16. Hutan

    Germany: IQWIG General Methods Handbook - submissions due on draft now 28 February 2023

    Hutan, Dec 14, 2022
    Replies:
    7
    Views:
    2,178
    MSEsperanza
    Feb 19, 2023
  17. Sly Saint

    AFME - Association for Myalgic Encephalomyelitis website (not Action for ME)

    Sly Saint, Oct 30, 2019 ... 2
    Replies:
    28
    Views:
    3,788
    bobbler
    Dec 30, 2022
  18. Andy

    UK: Survey: The Brain Charity: Have your say on neurological delays and misdiagnoses

    Andy, Oct 20, 2022
    Replies:
    2
    Views:
    1,160
    Sly Saint
    Nov 23, 2022
  19. JemPD

    UK Deadline 23rd Nov. Submit input into parliamentary debate for UN Day of Disabled People

    JemPD, Nov 19, 2022
    Replies:
    1
    Views:
    1,063
    NelliePledge
    Nov 19, 2022
  20. John Mac

    ME/CFS - course of illness survey, 2022, Norwegian ME Association, open to all

    John Mac, Sep 9, 2022
    Replies:
    15
    Views:
    2,112
    trudeschei
    Sep 27, 2022
Showing threads 1 to 20 of 157

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