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Advocacy Action Alerts

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  1. Yann04

    The Guardian: Share your experience of long Covid

    Yann04, Jan 17, 2025 at 1:35 PM
    Replies:
    1
    Views:
    208
    Ash
    Jan 17, 2025 at 6:08 PM
  2. ahimsa

    Support Keeping Telehealth – Take Action Today! (#MEAction, USA)

    ahimsa, Dec 14, 2024
    Replies:
    0
    Views:
    137
    ahimsa
    Dec 14, 2024
  3. Braganca

    Tell the New York Times about ME

    Braganca, Feb 2, 2024
    Replies:
    2
    Views:
    788
    wingate
    Feb 5, 2024
  4. Amw66

    A UK father on Twitter looking for experiences of harms from medical care for POTS, EDS and MCAS

    Amw66, Oct 24, 2023
    Replies:
    2
    Views:
    617
    Amw66
    Oct 24, 2023
  5. Adam pwme

    Very Severe ME - Photo Request

    Adam pwme, Jul 29, 2023
    Replies:
    2
    Views:
    761
    Hutan
    Aug 2, 2023
  6. ahimsa

    USA: Ask your Members of Congress to support the CARE for Long COVID Act! (from Solve M.E.)

    ahimsa, Apr 17, 2023
    Replies:
    1
    Views:
    885
    ahimsa
    Apr 18, 2023
  7. Laurie P

    USA: Urge the Social Security Administration to Allow SSI Recipients to Receive Help with Groceries without a cut in Benefits. Act by April 17, 2023.

    Laurie P, Apr 5, 2023
    Replies:
    0
    Views:
    751
    Laurie P
    Apr 5, 2023
  8. Hutan

    Germany: IQWIG General Methods Handbook - submissions due on draft now 28 February 2023

    Hutan, Dec 14, 2022
    Replies:
    7
    Views:
    2,000
    MSEsperanza
    Feb 19, 2023
  9. Sly Saint

    AFME - Association for Myalgic Encephalomyelitis website (not Action for ME)

    Sly Saint, Oct 30, 2019 ... 2
    Replies:
    28
    Views:
    3,448
    bobbler
    Dec 30, 2022
  10. Andy

    UK: Survey: The Brain Charity: Have your say on neurological delays and misdiagnoses

    Andy, Oct 20, 2022
    Replies:
    2
    Views:
    1,040
    Sly Saint
    Nov 23, 2022
  11. JemPD

    UK Deadline 23rd Nov. Submit input into parliamentary debate for UN Day of Disabled People

    JemPD, Nov 19, 2022
    Replies:
    1
    Views:
    941
    NelliePledge
    Nov 19, 2022
  12. John Mac

    ME/CFS - course of illness survey, 2022, Norwegian ME Association, open to all

    John Mac, Sep 9, 2022
    Replies:
    15
    Views:
    1,898
    trudeschei
    Sep 27, 2022
  13. ahimsa

    USA - 2022 Millions Missing protest: Online training session for those taking action from home

    ahimsa, Sep 10, 2022 ... 2
    Replies:
    21
    Views:
    2,928
    NelliePledge
    Sep 19, 2022
  14. Andy

    UK: NeuroLifeNow: regular surveys of people with neurological conditions

    Andy, Aug 17, 2022
    Replies:
    5
    Views:
    1,201
    livinglighter
    Aug 17, 2022
  15. Andy

    UK: Help Disabled people survive the cost of living crisis [send a letter to your MP]

    Andy, May 22, 2022
    Replies:
    2
    Views:
    1,001
    josepdelafuente
    May 22, 2022
  16. Noir

    UK: Long Covid protests calling for more research, Wed 9th March 2022

    Noir, Feb 2, 2022
    Replies:
    9
    Views:
    1,903
    Noir
    Mar 10, 2022
  17. Sly Saint

    Sign on to #MEAction’s response to flawed CDC review, deadline 15th Aug 2021

    Sly Saint, Aug 13, 2021 ... 2
    Replies:
    30
    Views:
    3,665
    Sly Saint
    Dec 20, 2021
  18. Haveyoutriedyoga

    Nov 2021: Call for patient public reviewers for BMJ Health and Care Informatics

    Haveyoutriedyoga, Nov 17, 2021
    Replies:
    4
    Views:
    1,950
    Arnie Pye
    Nov 19, 2021
  19. brf

    Millions Missing Canada advocacy, letter to political leaders during Federal Election 2021

    brf, Aug 20, 2021
    Replies:
    7
    Views:
    1,529
    brf
    Aug 26, 2021
  20. JoanneS

    2021 UK: ME Association - NICE and the unpublished ME/CFS guideline - contact your MP

    JoanneS, Aug 24, 2021
    Replies:
    8
    Views:
    1,692
    Sbag
    Aug 26, 2021
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