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I imagine Charles Shepherd and others are feeling as though they have helped someone across the road, only to have the person turn around and throw them under the oncoming bus. I don't think we even need to resort to 'he didn't have what I have' (as in PVFS and ME/CFS). I meet Paul Garner's...

Ok, so the post-Chikungunya arthritis is an inflammatory polyarthropathy (with any RA-specific characteristics best explained by someone coincidentally developing RA around the time of the Chikungunya and/or the background level of RA markers found in healthy people). And there is doubt that...

https://www.rheumatologynetwork.com/view/q-and-a-chronic-chikungunya-arthritis-vs-rheumatoid-arthritis Q&A: Chronic Chikungunya Arthritis vs. Rheumatoid Arthritis Jul 2020 Reading this article based on the Amaral paper I posted above, I'm not convinced the two conditions are different...

As an opposing view, suggesting that there is real rheumatoid arthritis as part of the spectrum of post-infection illness, not just an RA-like post-infectious arthritis: Rheumatoid arthritis after Chikungunya fever: a prospective follow-up study of 21 cases...

Chronic Chikungunya Arthritis and Rheumatoid Arthritis: What They Have in Common Amaral et al 2019 https://www.amjmed.com/article/S0002-9343(19)30911-8/abstract Abstract Chikungunya virus (CHIKV) is a single-stranded RNA virus belonging to the family Togaviridae and genus Alphavirus that causes...

Posts relating to Caroline's article in HeathWatchUK have been moved to a dedicated thread: HealthWatchUK: It is not only drugs and devices that can harm, 2021, Struthers

That doesn't seem an insurmountable problem. I told a journalist that we had a member who might be able to contribute to her story; she didn't have a problem becoming a member and contacting him through the conversation facility. That could be good. I'm thinking, if we do this, there should...

Sorry, I can't help myself... but Barry, I think if you focused less on what your car is not able to do and more on what it can, things would be better for you, and you wouldn't need to bother the mechanics so much. For example, some therapy to improve your ability to go around in circles could...

Barry, you are just looking at things the wrong way. Cars spend 99.5% of the time going forward, so your car's lack of ability to reverse is not really of any consequence. You need to get rid of this tendency to backwards thinking, and focus on going forward.

https://www.iacfsme.org/55832-2/ "Mark your calendars to join us on August 19-21, 2021 for our International Scientific Conference to be held in easily accessible virtual format. Last year’s first virtual conference was so popular, we are repeating it again this year! We anticipate an...

Resting-state functional connectivity, cognition, and fatigue in response to cognitive exertion: a novel study in adolescents with CFS (2019) Josev Modulatory effects of cognitive exertion on regional functional connectivity of the salience network in women with ME/CFS: A pilot study, 2021, Manca

Here's the study I mentioned: Resting-state functional connectivity, cognition, and fatigue in response to cognitive exertion: a novel study in adolescents with CFS (2019) Josev It gets complicated, there are lots of things potentially being compared. I'm not up to sorting it out just now.

I think a Melbourne imaging study of teenagers with ME/CFS found the same result (Sarah Knight was involved). People with ME/CFS are working harder to achieve similar results as those of people without ME/CFS. It's not sustainable - eventually they won't be able to keep up the quality of the...

I'm not quite sure why they talk about 'at the bottom or on the top of a likely complex disease'. I'm finding all this particularly interesting given I might be having rheumatoid arthritis issues myself, at the moment.

It's a really interesting study @Andy, worth looking at more. (I haven't double checked all of this, as I'm getting tired.) There is a spectrum of post-infective phenotypes, with a substantial overlap of musculoskeletal pain, fatigue and a whole range of other symptoms. And a lot of people...

'Finding your own way to manage patients with functional disorders' :laugh: Why not? Once you throw any idea of evidence-based medicine away, you might as well make up anything that particularly appeals. Paper circles on the ground, healing crystals, relentless positivity, whatever.

That worked really well when access to medical knowledge was tightly restricted. I wonder how big an impact google, social media and patient forums are having on the ability of doctors, and especially GPs, to bullshit and not get caught out, and what that might eventually mean for MUS. The...

I'm not surprised. The whole premise is at that level. Really, only three questions are required for diagnosis: 1. Do you have any symptoms? If yes, go to 2. 2. Have they been persistent? If yes, go to 3. 3. Can I explain all your persistent symptoms with my limited understanding of the...

Cara Mooney, the trial manager has replied to my emailed questions about recruitment and scope. Here are the answers: Yes we are still recruiting participants to the study however their GP practice does need to be signed up to take part in the study and be willing to run the searches and send...

And the lack of a major skew to female is interesting. Although this data is just at the 5 week mark and for any symptom. I hope that they will repeat the estimations at later points.