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https://www.psychologytoday.com/us/blog/patient-zero/201812/the-diagnosis-and-treatment-chronic-pain Robert C. Smith is banging the same drum as he writes why people with chronic pain should not get opioids. Apparently the following treatment solves all: (it involves a lot of patronising and...

:rofl: I won't comment on the others, but not being able to play golf is not one of the tremendous losses in my life.

Thanks Michiel. What a shame this is paywalled. I wonder if the people who go on to develop chronic Q fever experience Q-fever fatigue syndrome symptoms after the acute infection and before the chronic Q fever becomes apparent. What this suggests to me is that the Coxiella bacteria persists...

We have threads on two papers by Dr Bruce Patterson: Persistence of SARS CoV-2 S1 Protein in CD16+ Monocytes in Post-Acute Sequelae of COVID-19 (PASC) ..., 2021, Patterson et al (in prep) Immune-Based Prediction of COVID-19 Severity and Chronicity Decoded Using Machine Learning Patterson et al...

Partly answering my own questions: https://nyulangone.org/conditions/compartment-syndrome-in-adults/diagnosis So, you could anaesthetise the muscle and then do the invasive test. Or an MRI might detect the pressure.

It is interesting. I think the authors should be commended for thinking beyond a hand-wavy central sensitisation theory. The relationship between pain and muscle pressure isn't really the key thing here - as @Snow Leopard said, there's potential for a lot of fuzziness in pain reporting...

True, but there have been successes. HPV is one: The fact that people realised that a virus that infects nearly everyone can cause cancer decades after the infection is heartening, with the development of a vaccine, and the complicating issue of not all strains of the virus being carcinogenic...

I'm sure that there is much that is arguable or wrong in that article. For example: Even I, being a bit open to the idea that pathogens including chikungunya might cause chronic joint issues, can see that the author took a leap from weak evidence there. But, the author is suggesting that some...

Great stuff @FMMM1. Relevant to this call for appropriate research outcomes: NIHR's funding of the development of standard research outcomes for Long Covid, with the principal investigator someone from Kings College London who runs an FND clinic. United Kingdom: NIHR Long Covid research funding...

You and @rvallee are probably right, certainly about the futility of dealing with stupid people. But, at least on the days when the IACFSME isn't publishing Lightning Process promotional material as science, or something else equally incredibly bad hasn't happened, I think we can change things...

I understand that most good scientists would not want to spend a lot of time sitting in a committee trying to convince people who don't understand, talking about useful standard outcomes. But maybe the patient advocacy groups would see this as important? They should. As nightmarish as the...

I won't write here what I said aloud when I read the sentence I bolded. Possibly trying to make that study have a good outcome will be very difficult. Perhaps we need to support another group to make a good set of research outcomes.

I've been banging on about how the development of standardised research outcomes in treatment and illness course studies is really important for ME/CFS and related illnesses. This is important work, it could fix a lot of the problems we have seen with ME/CFS research - I hope it's not stuffed...

There was no group of people who have had Covid-19 but who don't have lingering symptoms. The healthy controls had to be seronegative. Being able to identify people who have never had Covid-19 from those who have recently had Covid-19 isn't as exciting as being able to find a difference...

Figure 3 (as best I can work out - the charts in Figure 2 are just leading up to the conclusion presented in Figure 3) So, here again, there are three charts, with classical monocytes (defined as CD14++ CD16-) on the left; intermediate monocytes (defined as CD14+ CD16+) in the middle; and...

Figure 1 So there are three types of monocytes: classical, intermediate and non-classical. The paper shows three charts (below) relating to each of those subsets, in that order. One key finding from the paper was that populations of intermediate and non-classical monocytes were increased in...

Having watched a video: Dr Patterson seems to be connected with a network of labs testing Long Covid patients, and clinicians treating them according to his protocol. Even Cort showed skepticism in his write-up, including a question-mark in his article's title. Patterson certainly has...

This thread about a lab service is relevant: USA: InCellDx Dr Patterson - New lab service offering cytokine tests to Covid longhaulers

https://www.healthrising.org/blog/2021/07/21/patterson-cracked-long-covid/ Cort's analysis 'Has Bruce Patterson cracked Long Covid?'

Dr Vallings, the medical advisor of the NZ ME/CFS patient charity, has been very much involved in IACFSME. She has stepped back from the board, but, until Covid, scarce NZ charity funds were used to send her to the IACFSME conferences. The IACFSME continues to have her prepare very shallow...