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Nath He focussed largely on post-Covid19 neurological impacts. He noted that all human coronaviruses cause neurological complications. Showed images showing effectively brain damage, microhaemorrhages, macrophage infiltration into brain tissue and quoted a recent study that found that altered...

Lipkin He had a slide showing that 11% develop ME/CFS from EBV, Ross River fever and Q fever; 50% develop it after SARS and MERS, but none developed after some other infections. He threw XMRV in there, which seemed a bit confusing, but helped to make his point of doing work in the field for a...

I've just listened to it. It seemed more targeted at clinicians, and so there wasn't a lot that would be new to most of us here. There was emphasis on Me/CFS being a physical illness, with the material presented being quite convincing on that. It also had a wide scope, so the presentations...

In New Zealand, basically the only cases we have are those travellers coming from overseas, who become sick while in quarantine for two weeks in managed isolation facilities. Life is pretty much normal, except for any international travel requiring two weeks in quarantine upon return, and for...

Moved from this thread I have just realised I have restless legs syndrome. I had had the vague idea that RLS involved legs spasming and so thought it was different to what I have. Normally, with just me to see my moving legs, I didn't think about it much. But I was driving my daughter crazy...

A number of posts about people's experience of onset and disease progression have been moved here: Has your ME/CFS progressed since onset?

https://www.afr.com/politics/federal/cia-agents-targeted-by-russian-spies-in-australia-20201021-p56798 There was a recent report of two more people claiming to have suffered from this problem in Australia.

I've had what seems to be ME/CFS for around 7 years, with the last two also going though the perimenopause (aged 53, 54). I find it hard to separate out symptoms into ME/CFS and menopause buckets. Really, the only thing I have noticed that I would say is definitely menopausal is that it's...

Wearable technology could indeed be useful in helping children/young people with ME/CFS manage their activity levels. But you just know that, in the hands of these clinicians, it could end badly. I can imagine them trying to get a child to sleep less or get to school, with a promised reward...

What evidence is there for children with ME/CFS producing less melatonin? There are questions about the safety of melatonin supplementation in children. Oh, good grief. These families have got enough to be dealing with, without cards that upgrade each week and colour-coded time. Yay for the...

Treatment? What treatment? This is a 2020 paper. It might be useful when commenting on the NICE Guideline draft if the draft says that CBT is useful in helping patients adapt to their illness. Clearly, the idea of CBT for ME/CFS as understood by at least some clinicians has nothing to do...

It's new stuff on the immune responses - those two papers in @Ravn's post are 2020 ones. The following New Scientist article (also very recent - 15 Oct) is a readable account of lipid droplets: Read more...

Mark Edwards and Jon stone are on the medical advisory board. There's a section of questions, all written in caps. I won't replicate it here, but caps text is a very odd choice for a population that has brain fog and visual disturbances listed as symptoms. "The most common treatment is...

This members only thread has a lot of discussion and information on this issue: UK: Flu vaccinations 2019, 2020

A post about United Kingdom funding for research into policy responses to Covid-19 has been moved to this thread: United Kingdom: MRC and NIH funding for Covid-19 and long Covid

:rofl: Setting aside the fundamental issue of no real animal model of CFS, I'm not sure that even this statement about prevalence of gynaecological issues and sexual dysfunction in CFS is true. The only epidemiological study on this I can recall was very flawed.

Others have said it already, but I also want to say that this is a terrific article, one I would like all health professionals to read. Thanks Nadine. I wish there was more attention paid to families with multiple ME cases. I can't help but feel that some careful Dr House-like...

But these estimates are built on surveys that mix up the symptoms of ME with depression and anxiety. Exercise alters brain activation in Gulf War Illness and ME/CFS. Washington et al. 2020 A sample of 38 people with ME/CFS found 18% had major depression. Self-Management of Chronic Fatigue...

The clever/awful thing about this paper and the BPS approach in general is that it doesn't say that the biomedical issues don't contribute. So if a biomedical cause is identified in someone, the BPS clinician can never be wrong. It's just that they see the biomedical issue as such a small part...

Although written about French chronic lyme groups, it looks as though the accusations would neatly fit the BPS/psychosomatic medicine promoters. This paper for example might kindly be termed 'non-specialised research' (and less kindly, but more accurately, a 'bigoted rant'). The rise of the...