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  1. Sean

    Why "brain retraining" concept as course makes no sense

    Big Pharma would never allow it. :speechless:
  2. Sean

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    A useful reminder to anybody who thinks we are too strident or harsh in our criticism of cruel jokers like this. And they wonder why we hate them. Real mystery that.
  3. Sean

    Preprint Abnormal T-Cell Activation And Cytotoxic T-Cell Frequency Discriminates Symptom Severity In Myalgic Encephalomyelitis/Chronic Fatigue Syndrome,'25,Lee

    I too see no reason to conclude they are different diseases. Could just as easily be due to different levels of severity.
  4. Sean

    News from Scandinavia

  5. Sean

    ME/CFS Skeptic - How many scientific papers are fake?

    ...evidence that the distribution of numbers of participants withdrawing from the trials was implausible, frequently contradictory reporting of the size of participant populations, implausibly prolific research activity, unethical conduct, and very frequent discrepancies between trial...
  6. Sean

    Petition to request updating of the description of ME/CFS in Kumar and Clark’s Clinical Medicine textbook.

    If there was a disease process underlying ME/CFS it would have already been found. No matter the cause, organ damage/disease is quite easily identified with current tools – clinical exam, routine bloodwork, and diagnostic imaging. And yet important discoveries continue. Not ME/CFS related (far...
  7. Sean

    News from Canada

    To develop the CAN-PCC guidelines, McMaster University’s GRADE Centre collaborated with Cochrane Canada, an arm of the Cochrane Collaboration. I think I am on the verge of spotting the problem here.
  8. Sean

    The Netherlands: Nederlandse Omroep Stichting (NOS) - Sander Zurhake

    Good interview, and good for Dutch patients to have somebody like Zurhake on the case. :thumbup:
  9. Sean

    Webinar : Gordon Medical Forum Long COVID & ME/CFS, July17-19, 2025

    The similarities between Long COVID and ME/CFS have given researchers new urgency to find real solutions. Many of us in functional medicine... I stopped reading there. Anytime I see the word 'functional' in this context I see a major red flag with Snake Oil Merchant written all over it.
  10. Sean

    If an effective treatment comes along for ME/CFS, how can we physically rehabilitate ourselves?

    I am not expecting any serious issues for the vast majority of patients, who I think will simply start getting on with what is left of their lives. The biggest problem is going to be stuff like recovering financially, and dealing the often decades long extreme stress and personal loss many of...
  11. Sean

    Petition to request updating of the description of ME/CFS in Kumar and Clark’s Clinical Medicine textbook.

    ME/CFS shares many of the same characteristics as other functional disorders (acute/subacute onset often after a physical or mental stressor, fluctuating symptoms often moment to moment or day to day, and disability level out of proportion to exam findings/pathology). Also, it is highly comorbid...
  12. Sean

    Foot washing in the shower

    I use an $8 plastic dustpan brush. Get maybe 12 months out it. One of these:
  13. Sean

    Petition to request updating of the description of ME/CFS in Kumar and Clark’s Clinical Medicine textbook.

    Recovery depends on positive patient engagement with the process. If our pseudo-treatment doesn't work it is the patient's fault. Yep. It is the mother of all double-binds.
  14. Sean

    Comparing labels for persistent physical symptoms: A cross-sectional study among lay participants and healthcare professionals, 2025, Lebrun et al.

    marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing marketing...
  15. Sean

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    I am at the point where merely getting the psycho-tyrants off my back for what remains of my life existence would be a major win, let alone getting a good treatment, or even a cure. Though, of course, I would love a good treatment or a cure as much as anybody, and want competent research into...
  16. Sean

    Oslo Chronic Fatigue Network

    such as symptoms that cannot be explained medically.... physical symptoms where healthcare cannot demonstrate objective findings for physical illness. Can never demonstrate, or has not yet been demonstrated? Because it is a very critical distinction, which he did not make clear. In the first...
  17. Sean

    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    Phil Hammond is no friend to us.
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