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That's actually pretty poor. I perceive that BPS doctors consider their interventions curative or at least powerful. Those figures make the effectiveness seem minimal, even when flawed studies are taken at face value. If GET was actually curative, it would be stupid simple to implement. It could...

My attitude here is summed up as "Trials or go home." This is a poor hypothesis paper with (probably) a hint of marketing.

I hope that's the case. That ME doesn't cause any permanent damage, but that there's some "switch" that's flipped and we just need to flip it back.

Wow, that was pretty good coverage. Dr. Li said that Long Covid is absolutely a real condition: He emphasizes that Covid causes unambiguously physical issues, such as diabetes in children and teens, heart problems and strokes in middle age, and Alzheimer's Disease in older people. While he...

Here's a summary of the genes found to be involved in both Covid-19 and ME/CFS: Angiotensin I-converting enzyme: Produces a hormone that constricts blood vessels, but has shown up in genetic studies of numerous other diseases. Multiple major histocompatibility complex genes: Codes for proteins...

Yeah. One flaw in this otherwise encouraging paper. They're discussing long Covid research in the context of the Human Genome Project and the enormous progress in managing HIV. The implication is obvious--that we should pursue a treatment for LC just as fervently.

Have they tried yoga?

Haven't looked closely at these reports in a long time. The most worrying figures are that 1.1 million people have suffered from long Covid for at least a year, and that 1.6 million have some disability, and 342,000 whose activities are "limited a lot." There's a lot of people who are disabled...

This is similar to ME research, where there are some signs of immune dysregulation, as if the immune system is activated in some ways and "exhausted" in others, but research is too preliminary to piece everything together.

When I said unambiguous, I meant that the clinical entity ME/CFS has a single correct code. Not that related problems would be immediately be fixed. You bring up a good point about older patients though. These people have R53.82 in their charts and it may not be changed for years or ever. This...

Oh my gosh. I've observed that your posts often express a cynical view of medicine...now I know why. I got diagnosed within 8-9 months of discovering ME (though I was sick for years previously), and the professionals I see regularly are on my side (my physician, sleep doctor, and counselor all...

Yes. This how I imagine the progress of research into post-infectious conditions: "You need to stop collecting welfare and go back to work. Nothing's medically wrong with you" "Your symptoms are real but due to deconditioning. Gentle exercise might help." "If you have PEM, be very careful about...

You stopped?

My experience with ME was even more extreme. It took me 3 years, 9 months to be diagnosed, and I missed out on over $70,000 in disability benefits. Fortunately, I applied for disability for autism in 2018, but was denied and never appealed. When I applied again in 2021, they determined their...

Oh, for sure. I stand by my original comment--I'm very proud the NIH and CDC speak of ME/CFS as a serious problem. But there's not enough action. They're consulting experts in post-viral syndromes in the RECOVER trial, publishing good material about ME, and funding some research. That's good...

I know the stereotype that fit, athletic, or tough people don't get long Covid, but self-employment is a new one. (I guess the idea is that self-employed people are hard workers.) I find it kinda funny because I was self-employed when I got ME. Sure, it was a side business, but it checks the box.

Yikes!