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Twitter post from #MEAction

Reminder for anyone who wants to help out with the 2022 Millions Missing protest scheduled for Monday, September 19. There's an online training session tomorrow - Sunday, September 11, 12 pm Pacific Time, 3 pm Eastern Time - for people who will be taking action from home. I believe that...

Article from the Washington Post (no paywall) about fall booster shots for the USA. No idea how accurate this information is, just passing on the link: What you need to know about fall booster shots of coronavirus vaccine https://www.washingtonpost.com/health/2022/08/31/fall-booster-shots-2/

Two videos about orthostatic intolerance, part of the Project ECHO series for PASC (Long COVID) and Post-Viral Syndromes, have been posted to the Bateman Horne Center YouTube channel: Orthostatic Intolerance Part 1: Diagnosis From the video description: Orthostatic Intolerance Part 2...

#MEAction has posted the latest article in their "Facets of ME" series - Travel Tips Full article here - https://www.meaction.net/2022/08/26/facets-of-me-travel-tips/

Mildly annoyed to see these quotes from Matt Durstenfield (a cardiologist) near the end of the article: It's possible he was talking about a much broader group of "Long Covid" patients - those who do not have PEM, and do not meet the ME/CFS diagnostic criteria, and so on - but it's not clear...

Announcement on the ME Action website, posted on August 2nd: https://www.meaction.net/2022/08/02/just-in-time-for-school-pediatric-pacing-guide/

The summer 2022 edition of the Solve M.E. Chronicle is now available. Link to PDF: https://solvecfs.org/wp-content/uploads/2022/08/Chronicle_Summer_2022.pdf

It looks like they have changed the headline on this opinion piece. Same author, same date, but the new headline is, If You’re Suffering After Being Sick With Covid, It’s Not Just in Your Head The author posted a gift link (no paywall link) on twitter today...

Ten minutes seems like a rather short time frame for a tilt test. I thought that at least 30 minutes was more usual? And I remember in the 1990s the recommendation from Dr. Rowe at Johns Hopkins was 45 minutes. A 10 minute tilt table test might be long enough to find what they call "classic...

Moved post Washington Post article about Long Covid and the brain: How long covid reshapes the brain — and how we might treat it Gift link (no paywall for 14 days) - https://wapo.st/3ww3wIK (Note: In the past gift links have not worked for some forum members but I'm sharing it in hope that...

New op-ed in The Philadelphia Inquirer by Jennie Spotila: Let’s approach COVID like the weather. Depending on conditions, we grab an umbrella (or mask) Tweet from the author:

I'm not sure how exactly our forum members might use this type of guideline, but I came across this recently and found it interesting. Link to PDF file created by MEAction: Journalist Primer: How to Report on ME/CFS

MEAction sent an email with new information for the #MillionsMissing September 2022 Protest. I've copied the full text into the quote section below. Here's a link to the #MEAction website with more information: https://millionsmissing.meaction.net/protest2022/

#MEAction will hold a Virtual Town Hall on August 27 from 12:00 – 1:00 pm PDT (3:00 - 4:00 pm EDT). This purpose of this meeting is discuss the #MillionsMissing September 2022 Protest in Washington, DC - now scheduled for Monday, September 19 at noon (new date). The BlueJeans Events app will...

A new video on Post Exertional Malaise (40 minutes) has been posted on the Bateman Horne Center YouTube channel: From the video description field:

I'm replying to my own comment to add that Solve M.E. obviously has a longer term strategy with this PSA series. They did mention this in their announcement: So I should probably be patient and wait for the whole thing to play out. Maybe they decided that unknown terms in the first PSA would...

I'm happy they made this PSA, but I do wish there was at least one mention of ME/CFS in the video (eg, "many Long Covid patients meet the diagnostic criteria for ME/CFS..."). FYI, the link in the PSA - solvelongcovid.org - redirects to https://solvecfs.org/solve-long-covid/

Thanks for transcribing that quote! I was just coming here to do that. :) Screen shot from about 9:20 in the video:

The reason I was surprised by the "and" in the name is because this is a document from a US government organization. I've never seen this phrasing on either the CDC or NIH websites. I figured this document would use the same wording that's used by other government bodies.