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For those with the brain power to discuss this new paper (not me, sadly!), Manuel posted a new thread this morning - https://www.s4me.info/threads/epstein-barr-virus-behind-the-development-of-autoimmune-diseases-cancer-me-cfs-and-long-covid.28782/

From an Solve M.E. email, received today: Link to the recording:

From an Solve M.E. email, received today: Link to the recording:

Abstract Postural Orthostatic Tachycardia Syndrome (POTS) is a complex, multisystem disorder characterized by orthostatic intolerance and tachycardia and may be triggered by viral infection. Recent reports indicate 2-14% of COVID-19 survivors develop POTS and 9-61% experience POTS-like...

Freakonomics, MD Episode 45: Could Long Covid Help Treat Other Chronic Illnesses? https://freakonomics.com/podcast/could-long-covid-help-treat-other-chronic-illnesses/ "Chronic fatigue syndrome looks remarkably similar to Long Covid, but has been ignored by the medical community. Could...

New blog post from the Bateman Horne Center, Why the 10-Minute NASA Lean Test? https://batemanhornecenter.org/why-the-10-minute-nasa-lean-test/

I think the answer is that this new "bill of rights" does not announce any new laws. It's just a framework to help passengers understand the laws that already exist under the Air Carrier Access Act (ACAA). From the website: "The Bill of Rights does not expand or restrict the rights of air...

I'm not sure whether this document has any "teeth" (a way to enforce it) but I thought this might be helpful for disabled folks in the USA who are able to travel. The US Department of Transportation has just posted the first ever Airline Passengers with Disabilities Bill of Rights...

Merged thread USA: "Towards a Patient-Driven National Research Action Plan: Recommendations for the National Research Action Plan on Long COVID" A document with recommendations for Long Covid research, policy, and communication was announced on twitter today by the group Patient-Led Research...

Merged thread Opinion: The worst virus variant just arrived. The pandemic is not over. (Washington Post) Short op-ed that talks about BA.5 and BA.4. Regular link to story: https://www.washingtonpost.com/opinions/2022/07/07/worst-virus-variant-just-arrived-pandemic-is-not-over/ Gift link (no...

I found this only because someone shared the link on twitter. But for future reference here is the INIM events page: https://www.nova.edu/nim/events.html I have not watched the full video but I did look at a few excerpts and it seemed worth sharing.

A recording of the 2022 Institute for Neuro-Immune Medicine (INIM) Conference, held on June 10, has been posted to YouTube.

#MEAction's monthly "Facets of ME" post for June: Facets of ME: Temperature Dysregulation https://www.meaction.net/2022/06/23/facetsofme-temp-dysregulation/

I agree! When folks have told me that acceptance must mean I have given up, I generally say that acceptance is about the present moment. No one can predict the future. Therefore, no one can accept the future. One could accept a diagnosis that includes the likelihood of not getting better, but...

[ EDIT: I wrote my comment thinking this thread was about acceptance as a general idea. I didn't realize the context was Acceptance and Commitment Therapy (ACT), something I had never heard of. Sorry for any confusion! ] Another good thing about acceptance is it might lead to the use of...

@perchance dreamer - thanks for posting the details of your experience with cryotherapy. Can you share what country this was in?

Yes, that could be possible. I do feel better in the cold, just posted about it on another thread. By the way, I hope my earlier post didn't look like I was laughing *at* you! :eek::bag: I thought you were making a joke about how cold it got Canada so I posted a laughing emoji. Anyway, so...

I'm not opposed to doing research on this, and I know the exposure time is very short, but I wonder what the risks are? Found this short article on whole body cryotherapy (WBC) on the FDA website...

:laugh: I looked up the coldest temperature ever recorded on earth: − 93.2 °C. That's still warmer than the temperatures used in this study.

Same. Cold always helps me a lot. I always thought it might be due to low blood volume and that extra vasoconstriction pushing more blood to the core (heart/lungs) - maybe also the brain? But that's a complete guess.