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Adding to this thread to cross reference information about Bateman Horne Center (BHC) research that has been posted in other threads. The BHC website currently lists three items on their active recruiting page: * Endothelial Function and Upright Activity in ME/CFS and Long COVID [forum thread...

People don't choose illness or injury, but they can choose the language used to describe their situation. There are some people with various impairments or illnesses who don't want to be called disabled. They prefer other labels (Handi-Capable, disAbled, differently-abled, special needs...

Can you explain your point further? I don't understand and I'm sure I'm missing something important. Thanks!

Article posted today by #MEAction: U.S. Healthcare Coding Revisions Enable Tracking of ME/CFS Cases https://www.meaction.net/2022/06/13/u-s-healthcare-coding-revisions-enable-tracking-of-me-cfs-cases

Over the past week or so #MEAction has released several short video clips (2 - 5 minutes long) from their longer Millions Missing presentation. These are available on their YouTube channel - https://www.youtube.com/c/MEActionNet/videos. All videos have subtitles and sign language translation...

I know that Washington Post gift links have not worked in the past for some folks on here, but here's a gift link (no paywall for 14 days) for those who can access it this way - https://wapo.st/3zlU1xN

Beloved Principal Who Fought DeSantis Over In-Person Learning Dies of Long COVID https://news.yahoo.com/beloved-principal-fought-desantis-over-215024685.html Edit - found a slightly longer article about Jim Jackson which uses the term "long-term COVID" so I'm not sure now what his diagnosis...

I just saw this article on Medscape: Nasal Spray for Converting Paroxysmal SVT Seems Feasible, Safe for Long-term Use https://www.medscape.com/viewarticle/973808 I thought I'd post it on this SVT thread for anyone here who might be interested. (mainly me - this way I can easily find it again!)

Moved from the News from NIH thread (my bolding) That sentence that I marked in bold immediately stood out. But then I thought, maybe it could be interpreted in multiple ways? The more generous interpretation is that researchers did believe that ME/CFS patients had biological problems. They...

I thought I'd add that this all started from responses to a twitter poll that I posted. Twitter polls are not meant to be scientific, of course. I saw the poll as a way to get a conversation started about the interaction between Long Covid and ME/CFS. I wanted to talk about whether Long Covid...

Thanks for your reply, @josepdelafuente I also got a response from someone else on twitter. Not posting details since it was in a DM (direct message) but here's the summary. They got their long covid diagnosis from a long covid clinic. The diagnostic code given to them was U09.9 (Post...

A couple ME/CFS patients on twitter have mentioned "getting long Covid" after being infected with SARS‑CoV‑2. Does anyone have a longer explanation for what it might mean to "get Long Covid" if you're already an ME/CFS patient? Long Covid is a pretty big umbrella term. Does it mean these...

merged thread One Grim Statistic Lays Bare The Truly Relentless Grip of Long COVID https://www.sciencealert.com/one-grim-statistic-lays-bare-the-truly-relentless-grip-of-long-covid This article is about the study being discussed on this thread...

Coding Long COVID: Characterizing a new disease through an ICD-10 lens https://www.medrxiv.org/content/10.1101/2022.04.18.22273968v1

Getting back to the topic of salt, and whether there is evidence for high sodium diets helping certain patients - The first post in this thread uses the term Orthostatic Hypotension (OH). Terms and definitions can differ, or overlap, but I think most folks use OH to mean a fairly quick drop in...

I watched part of this video. I stopped at about minute 25 or 26. Some parts were okay, but at minute 21 he showed this slide warning about the "Downward Spiral in PASC" (PASC = Post-Acute Sequelae of COVID-19). The slide says PASC, so I thought maybe he just means those patients without...

Interesting comment about Long Covid from Dr. Deepti Gurdasani, seen on twitter: "Long COVID isn't a trivial condition by any means, and it's clear that for many people it's persistent (which might explain why we have >780,000 people with illness for >1 yr). Essentially, if a patient doesn't...

The recording of today's Independent Sage session on Long Covid has been posted. YouTube summary: "Joined by guests Prof Paula Lorgelly and Prof Andre Siqueira, and chaired by Prof Danny Altmann, today we are discussing concerns surrounding Long Covid. With Prof. Anthony Costello hosting and...

Sorry it took me so long to reply! I'm not sure what's wrong! Maybe Washington Post gift links don't work in certain locations/regions? Or maybe they only work if you turn off tracking protection, or allow ads, or something like that? I wish I could figure this out! There is nothing on the...

A recording of the ECHO webinar held on April 14th (Autonomic/Cardiac Manifestations of Post-COVID Conditions) has been posted: