Search results

There an answer for every type of behaviour. If you don't do things that might cause a crash it is 'avoidance' behaviour, if you do things that cause a crash it is 'all or nothing' behaviour, meaning there is an answer for any behaviour regardless of any internal logical consistency. Any...

In the reported case study, is it not internally inconsistent to refer to a condition as a 'functional disorder' at the same time as believing FMT provides a 'good medical therapeutic intervention'.

I had a short period of IBS following salmonella poisoning some years befor the onset of ME, and then an apparent total remission. However it later reappeared in conjunction with the onset of my ME. The relationship seems complicated, sometimes something like diet (eg chocolate) triggers a...

A null result in this study may not rule out a disturbed gut flora being implicated in the symptoms of ME. If the fecal transplant does not restore the microbiota balance are there other factors involved in perpetuating the imbalance? On a totally unscientific and anecdotal level, when I have...

In theory it looks an interesting study, but in practice I agree with @strategist that the Chalder Scale is at best very problematic. The recent Vink and Vink-Niese paper, though considering the studies used in the Cochrane GET review, has a very helpful section on the problems with the Chalder...

Re reading this retrospective registration of this feasibility study, the 'secondary study design' is described as a 'randomised controlled trial'. Interestingly the subjects are their own controls, being assessed over different pre treatment periods without intervention and 'randomised' to...

The registration for the study contains the phrase "There are no anticipated risks involved with participating in this study". Will this mean that the researchers are repeating the trend in [the parallel] ME/CFS GET studies of failing to adequately record any harms or adverse reactions, clearly...

Do we know if the problems/issues that existed when this group was initially set up have been resolved? Obviously the Board members mentioned are reassuring.

I am all for names that people in general don't understand, as it means they have to ask what the word means. So many terms associated with ME seem to the lay (or even some professional) audience to have an obvious meaning which in practice results in misunderstanding. The obvious example is ME...

An important issue that is regularly debated here but needs to be understood by a wider audience, thank you @dave30th. Having put some effort into my comment on this on the Virology Blog, to feel I am getting full value, I have copied it here too, even though it is only repeating what many have...

So heartening to read this clear and concise debunking of the Cochrane GET review.

The emphasis on PEM as a defining characteristic of ME is used in the selection of research subjects, but it is not generally the object of most biomedical research. So though it is used to direct researchers as to who to look at, I don't think it is restricting what they look at. Even when...

@Samuel, I am struggling to read your post. This is partly my cognitive problems, but also I think when you copied and pasted it here the original formatting was lost. I hope you don't mind me trying to reformat it in order to try to understand it. Here is my attempt: My apologies if this has...

It is good to see research challenging the sleep police. There is some evidence that aspects at least of our sleep patterns are cultural, for example there is the suggestion that in Europe at least the previous norm was not 'go to bed, fall asleep for eight hours, then get up' but rather 'sleep...

I have signed this petition though I have mixed feelings about the idea blocking speakers at university events. Though free speech is important, we must also draw the line at actions that cause real harm to people. Also the BPS crew have consistently ignored and attempted to suppress views that...

Some years ago I tried VegEpa for a number of months, perhaps six months or more, can't be sure of the details now. It was at a time when things were going relatively smoothly, but if there was any effect it was not dramatic. I stopped because I was not convinced it was having any effect on my...

I tried to leave a rating, but it it doesn't seem to accept it. It says there was only one rating when I look and that that one rating has an average of four stars. It is also reporting no comments have been left and I can not find a way to leave a comment. (Am using Safari on an iPad)

My understanding is that there is some evidence that very gentle exercise helps with fibromyalgia in isolation, but I have not read any of the studies and have no idea if they are any more reliable than the evidence for exercise helping ME. However it does sound like this lumping together of...

Do any of the people that use such as Fitbit or heart rate monitors find that this gives them more concrete data to help with activity planning and pacing, or does it still require an element of trying to be self aware and guess work?

I had a several year period of being completely housebound, but am now to some extent able to go out with care and planning. Going shopping only gets attempted if I can rest the day before and the day after and have nothing else that has to be done the same day. So if something else crops up...