Search results

I agree with this statement, but would assert Poff Watt and the MRC, by repeating the lies of the PACE researchers in denigrating the rational criticism of bad science by balanced and fair patient scientists, are the ones showing a lack of respect. The PACE study is a prime example of a failure...

I guess the question is what is their relationship with the FITNET researchers and who is advising them on MUS and compiling their training materials and manual for their course. If they take what the usual suspects say at face value they may not have realised up to now how 'controversial' the...

Surprising it is not on the list given they have over seventy topics, one wonders how they plan to deal with them all in one day.

Should it be a kipper rather than a herring as it may be we will find something smells rather strongly here.

This is We have a growing list of potential 'defects' in ME and a growing list of subjective experiences, which as of yet we can not unambiguously connect. For example with a brain tumour we may be in a position to say that certain headaches are directly related to the effects of the tumour...

Thank you for this link, as it is reassuring to know that I managed to sign the petition.

It is good that you [Greg Crowhurst] have put so much work in to providing this beginning of a 'natural history' of ME. Science should be both Popperian, testing hypotheses, and observational in the sense of the Victorian descriptive natural histories. Unfortunately for the BPS brigade here in...

You are correct, though we do not yet know if this was a formal commission by the University of Bristol FITNET team, reinforcing their complete inability to conduct scientifically reliable research, or a result of an overlap of personnel or theoretical approach between the Bristol/Bath team and...

It seems Red Whale are already marketing training for Medically Unexplained Symptoms to GPs and primary health care professionals, which includes a handbook that seems by inference, if it is also the online handbook alluded to in their CFS/ME Update, to contain information on CFS/ME ("There is...

Thank you @Sly Saint for pointing out that Red Whale are already providing training in relation to MUS. So they are already invested in the BPS approach, and depressingly their October MUS course is already fully booked (see...

Thank you @dave30th for following up this misleading and inappropriate advertising with your letter to Red Whale. I understand you wanted to focus on the unambiguously indefensible methodological problems of which here the pre-recruitment promotion of the treatment as effective and the...

@dave30th has written to Red Whale, so it may make sense to delay making a complaint to the Advertising Standards Agency until it is known if he has had a response. His letter to the company (see http://www.virology.ws/2018/08/22/trial-by-error-my-letter-to-red-whale-gp-update/ ) is currently...

Red Whale have on their website a 'GP Update' that presumably was also emailed to all GP practices and is what @dave30th was given and refers to in his virology Blog post. See https://www.gp-update.co.uk/SM4/Mutable/Uploads/pdf_file/CFS-ME_-treatment-for-teenagers.pdf Not only are they...

Red Whale are unequivocally prejudging the trial outcome and endorsing FITNET- NHS, under the title "effective home treatment for teenagers" they say "we think this is a good opportunity for teenagers with this difficult diagnosis". See their GP updates section...

Is it relevant to ask if Red Whale are being paid to promote the trial or if they are doing it as a 'public service'? One wonders if there are any links between Red Whale and the researchers/trial.

Is there any mileage in complaining to the UK Advertising Standards Authority about the mail shot to GPs promoting the study which includes untrue claims of recovery resulting from CBT/GET? See https://www.asa.org.uk/make-a-complaint.html Their guidelines explicitly include such direct mailing...

Is what is happening here that we are looking for a consensus on an accurate linguistic description of what is happening in a single short phrase, which may ultimately prove to be impossible given the variation in associations of individual words in different people's personal vocabulary or...

I agree with Sasha in that I don't feel particularly uncomfortable with the term 'malaise', though for me it has the physical connotations only and not the general psychological connotations that it has for some people and in the dictionary. For me PEM can involve the exacerbation of specific...

Tried several browsers on my iPad, Chrome, Safari and Puffin, but got the 'new website coming soon' message

I added the following as comments to the Virology Blog post, but because of the restrictions of DISQUS I had to divide it into small sections. A couple of my points have already been raised above. My feeling is that the note reflects major concerns about Dr Brown's understanding and attitude to...