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I think I now would be more shocked by a proffessor, advocating a BPS approach to ME/CFS and/or the catch all psychiatric pseudo non diagnosis of MUS, that did acknowledge a valid criticism and corrected their work. It definitely feels there is something rotten in this area of medicine/academia.

National Information: NHS overview of MUS https://www.england.nhs.uk/mental-health/adults/iapt/mus/ NHS guidance for commissioners https://www.jcpmh.info/wp-content/uploads/jcpmh-mus-guide.pdf Improving Access to Psychological Services...

I think that one of the reasons the researchers want to include ME/CFS in MUS, over and above empire building, is that they can lay claim to the PACE study as justification for their behavioural and psychological approach to treatment. What little I have read of MUS relies heavily on PACE and...

Another article on this case, a very damning account in the Disability News Service, listing the DWP's failures to follow its [own] procedures: https://www.disabilitynewsservice.com/jodey-whiting-dwp-ignored-five-safeguarding-chances-before-wca-suicide/

My experience was the same. The DWP awarded me no points on care needs and couple of points on mobility, I think though I may have misremembered, but definitely not enough points for an award for either component. The Tribunal panel said they stopped adding points for both when they reached the...

'Primary stress-related diseases', why do researchers take their prejudged beliefs as a starting point? We have no clear understanding of the relationship between 'stress' and these conditions, and unjustified covert assumptions surely undermine rather than support this research.

Do these researchers ever define what they mean by 'central sensitivity' or do they have a way of actually measuring it? At present it seems to me a circular definition, certain conditions are presumed to reflect 'central sensitivity' and the existence of 'central sensitivity' is evidenced by...

I found the CAB very helpful, and they came to my house as I was unable to go out. However at the appeal stage I was supported by a County Council welfare officer, who was very experienced although we only had limited communication on line before the appeal hearing. Some local ME groups, such as...

Team science seems to be the accepted way forward and is particularly relevant to such as ME where 'big data' is probably very import in moving our understanding forward. However does it also carry the risks of increasing the need to conform to the current orthodoxy and to defer to eminence on...

Unfortunately, I suspect for most the PIP process involves the unpleasant inconvenience getting through the assessment and mandatory review and the year plus wait, before there is any serious attempt at evaluating their claim by the appeal tribunal. [Certainly for me the assessment and mandatory...

I have given up trying to predict what will happen next. The BPS cult are obviously now engaged in a full scale rear guard action. Perhaps it is understandable that they are so committed that they can not step back, but why do so many others in the British (and to a lesser extent the...

Yes the magic happened.

From Dr Keith Geraghty, this morning: “For the record this morning, after I published articles that were critical of the PACE trial, two of the PACE authors W&S lodged complaints about me and my work to my host University. Emails and phone calls to ones bosses is very intimidating.”...

I normally ignore articles with arbitrary numbers in the title (x things abou ... ). However this is not as bad as most.

Given their advert for a new Board Member was dated the 13th of February with a deadline of the 12th of March. Even that seems a relatively short period given they are seeking nominations for this post from countries not already represented on the Board.

Those dangerous inactivists.

Was it the main Cochrane site (https://www.cochrane.org/) or the Cochrane Library that you had problems with? I am able to access the main site, but have problems accessing their Library from my iPad. I usually have to try several different browsers till I find one that will let me load it.

My hope is that when one of them falls, the whole circle will just collapse. Unfortunately the British way is to wait till the principles have died, which people are no longer prepared to tolerate. At present my money is on Cochrane being the first to go, given good science is their raison...

There are increasingly so many examples of conditions being identified on the fringes of our medical understanding as to render the whole idea of categorically diagnosing some one with a pseudo psychiatric non diagnosis of MUS syndrome both ludicrous and dangerous.

I am surprised the PACE appologists are describing us as 'activists' as that rather contradicts their belief system that we have actively chosen to be inactive. [Surely they should be using 'activist' as a term of commendation, given their belief that we would be magically cured if we just got...