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I can do more lying down. I can use my iPad lying down, but struggle to use the computer sitting. Also I do not have a phone set up in my bedroom (no mobile signal where I live), so generally try to Skype/ FaceTime or email lying down rather than using the phone.

I also experience additional language processing problems linked to the current severity of my ME or to PEM, over and above the very common word finding difficulties. My spelling has always been poor but it can completely fall apart during PEM. In a situation like this with poor original skills...

I too can experience 'jamais vu' a failure to recognise places I know well. When driving I can get lost on routes I know very well. It can last from a minute or so to several hours. Sometimes I can remember verbal information about the route that I can use to navigate, eg I know that I turn...

Comments about this have been added to David's latest Virology Blog and Facebook posts.

Thank you for creating a thread for this issue, I had wondered about creating a seperate thread on this when it arose elsewhere but did not feel up to the cognitive challenge of working out how to create a thread. I have noticed that doing new things presents a particular challenge when less...

Unfortunately self medicating with sugar does work.

I agree with this, a review looking at what we already know in the cognitive deficits that arise from ME: Are we yet in a position to say that what changes are permanent and what changes are reversible? Are some cognitive deficits common to all people with ME and do others vary? Do the deficits...

Presumably Prof Crawley will spin this and the related threads here as concerted harassment. It can be hard to be objective, Prof Crawley may represent all that I see as bad and harmful in the mistreatment of ME in the UK and it is hard not respond imteperately to what appears to be medical...

Thank you for the link @Esther12. It is self evidently not true that she made the change to main measure before she collected data, as half the data was justification for her change. This double speak and use of half truths is very reminiscent of Prof Crawley's use of a waiver of ethical...

Thank you @Esther12 I had not realised there was a seperate paper on the feasibility study. This surely reinforces the question mark over Crawley's claims that outcome measures were changed before results were collected. As the final study subjects included the feasibility study subjects surely...

I am not sure what Crawley means here, as she conducted a feasability study but then included the feasability study in the main trail, meaning that at least half the subjects had been through the process before the design took its final form. Doesn't this mean that the data from at least half...

Thank you @Alvin for this clear summary and bringing together the information relating to funding and disease burden.

I agree that MEGA in theory is a good idea, however in practice there are so many reservations. Holgate has defended PACE and Crawley's GET and CBT based research, suggesting that he has a very inadequate understanding of ME/CFS, further another researcher involved is advocating the use of CBT...

Sorry I meant to add that I seem to remember that some of the research on post exertional malaise has looked at some simple tests of cognitive function but can not of the top of my head remember any details, it maybe that some readers with a more reliable episodic memory than me could fill in...

Using cognitive tests that reflect general impaired function a single test would not distinguish between fatigue inducing conditions, for example with a digit span you would expect to see it impaired in people with depression as well as people with ME, however repeated testing may reveal...

There are a large number of potentially objective measures of cognitive function, though there would need to be a lot done to evaluate which were relevant to ME. There are general features that are impacted by most conditions such as short term memory problems or word finding difficulties, that...

A great article. Do share it and do leave comments on the Independent site, so we get its traffic and profile up.

Reading this through it sounds like I am becoming a conspiracy theorist. In general I believe most supposed 'conspiracies' are in fact short sightedness and inefficiency combined, resulting from judgement unconsciously impaired by self-interest, rather than any conscious plot. I suspect Prof...

Thank you to the annonymous advocate for taking the trouble to prepare this information and sharing it here via @Lilpink This serves to reinforce the idea that an aparantly insignificant quibble about the failure of one author to have appropriate ethical aproval of an obscure and unimportant...

When I was first aware that there were questions over the ethical oversight of Crawley's school absence study, I thought it was perhaps a purely technical point relating to probable woolly thinking and incompetence of Crawley's part, that it was only significant because of her and Bristol's...