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(Not sure if this is the right place to post this, re evidence of harms; feel free to move) Just wanted to flag up this sentence: "Awareness was growing of the ineffective or possibly harmful16 effects of approaches such as a graded exercise programme" in...

The impact in question being somewhere between negligible and nil.

"We don't understand why what we're doing isn't working, so you should definitely keep paying us to do more of it."

Bless their hearts.

Is it possible to see how many women's symptoms were unaffected by menstrual phase? (I ask because I'm one of them and I don't think I can be that unusual.)

This is the kind of thing that gets weaponised against autistic people who benefit from familiarity and predictability, to imply that they're just being "controlling" and "manipulative".

"Slow-paced breathing improves HRV and calms the nervous system" is one of those articles of faith for all the wellness devotees and mind-body proponents, so I wouldn't be at all surprised if it turned out that the reality is a little more complex. (My own HRV decreases with slow-paced...

From Hilda's blog at https://absolutelymaybe.plos.org/2025/01/24/when-journal-scientific-society-and-community-values-clash/ Did this recommendation by the IAG make it into any of Hilda's "monthly" updates in 2024?

There were only 10 Long Covid patients in this study.

Interesting to read this in conjunction with the other thread about how doctors need more self-compassion because it's so stressful for them having to deal with patients who have unexplained symptoms.

but ?

Great idea, to help patients understand how they can train their nervous system through the wonders of neuroplasticity to affect how the balls in the lotto machines will fall - the healing power of mind-balls interaction.

I feel quite livid that money is being spent on this let's-all-pretend-we're-doing-science!! stuff while in the real world real people are having their lives ruined by a disease that has absolutely and precisely nothing to do with one's willingness to press or not press a damn button.

So there's a big overlap, with the lower bound only 0.1 of a point apart and the upper bound 0.8 of a point apart, and most participants in both groups falling in the shared area. But it's being sold as a group difference that allows researchers to hypothesize about the behavioural preferences...

Or perhaps it suggests that people who are ill may have particular pressures influencing their choices in lab-based tasks that have no relevance to their real-world activities, compared to how healthy people might approach the same task under the experimenter's eye. (edited to add: I would be...

i.e. the LC patients' interoception was accurate, which will be annoying for those at the NIH who want LC to be an 'interoceptive disorder'.

It might be an accessible income stream for some people who haven't actually recovered to the point where they could go back to their previous jobs.

Also the idea that the patient will feel better and recover if you confidently "reassure" them by telling them any old explanation for their symptoms, whereas telling them the non-reassuring truth that you don't know the cause will scare them and make them stay ill.

Stuart Murdoch on Craig Charles' show on 6 Music this afternoon. If you find the show on BBC Sounds, the interview starts about an hour in. Early on in the interview they talk about him running a marathon at 18 and running 10K road races, until he 'got chronic fatigue [sic]... maybe I burnt...

One of those resources which seems as if whoever wrote it didn't bother to read what they were writing. Don't focus too much on your symptoms - but also you should complete daily and weekly planners minutely analysing your activities, symptoms, "feelings, behaviours and beliefs". Be optimistic...