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I have constant internal tremors but my cortisol was normal when tested. all I can say for sure is they're worse when I've over-exerted and when I'm hungry.

I actually have thoughts on this whole subject which I would love to put into a few coherent paragraphs, but my brain is not co-operating :rofl: so I'll just say "yeah."

It's like reading a treatise by a couple of medieval theoreticians earnestly explaining the theory of the humours and how digestive disorder is caused by excess phlegm driven out from your brain to your stomach by the autumn winds. Those guys probably had a good old sneer at their patients'...

Goes on to promote exercise rehabilitation, inevitably.

It's hard to take a horse to water when people keep putting the cart in front of it.

Interesting that some of their subjects had objective cognitive deficits in some domains but didn't subjectively report experiencing it. So a better title might be Post-COVID-Syndrome Patients Might Overestimate or Underestimate Own Cognitive Impairment. Or perhaps Post-COVID-Syndrome Patients...

Their 'Good Day/Bad Day Questionnaire' is quite interesting. Don't think I've seen a discussion of it here? (Keywords are too short to search the forums.) It's obviously a blunt instrument, but giving answers for both ends of a spectrum of functioning might be more helpful than the majority of...

"After an hour-long stand-off (pictured), the activists eventually persuaded Department for Work and Pensions (DWP) civil servants to allow one of them, Rick Burgess, to address the disabled people taking part in the consultation. He asked those present to vote on whether they wanted to give...

Thanks. I've emailed mine.

Good point. The whole thing is probably pretty tenuous anyway given the infant nature of the art of trying to interpret psychological states from fMRI, and perhaps especially so in the context of other people's findings on cerebral blood flow.

So they expected to find PCS patients were less reward-motivated (because of our "anhedonia" causing us to imagine that we're fatigued, innit) but they actually found the opposite?

It's likely that not everyone who currently has an 'ME/CFS' diagnosis will actually have whatever problem the new biological explanation points to. Some will be left as a 'mysterious chronic fatigue' afterthought and they'll be great prey for the psychologisers - not only are all their tests...

So only two out of the 44 participants had a diagnosis of FND, but they all had FCD which is a subtype of FND? (according to the authors)

How interesting!

Thread on the preprint here. https://www.s4me.info/threads/long-covid-brain-fog-treatment-findings-from-a-pilot-randomized-controlled-trial-of-constraint-induced-cognitive-therapy-2024-uswatte-et-al.39224/ My comment there was: (edit to add: sorry for the unnecessary duplicate post, should...

:banghead:

At least they've stopped using that line about how 'at worst', ME/CFS can make people 'feel' they aren't getting proper care. Perhaps someone's explained how insulting it was.

I'd bet money that the phrase "As a large language model" appears somewhere in there.