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  1. BruceInOz

    Finding my way out of the fog by Jess Davis

    Oops, forgot the link! Thanks Sean.
  2. BruceInOz

    Finding my way out of the fog by Jess Davis

    Great article by a Long Covid sufferer discussing Long Covid, ME/CFS and POTS on the Australian ABC news site.
  3. BruceInOz

    Fear conditioning as a pathogenic mechanism in the postural tachycardia syndrome, Norcliffe-Kaufmann et al, 2022

    Wouldn't that actually be average is 31 and standard deviation is 12? It would be rare in a distribution for the difference between minimum and average and between average and maximum to be the same.
  4. BruceInOz

    Mind Body Intervention for COVID-19 Long Haul Syndrome

    I guess the success of BPS for back pain provides a lot of the motivation for the belief that it should also work for fatigue. Is the research showing that it works for back pain on a good footing? Does anyone know of threads here anywhere discussing that?
  5. BruceInOz

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    Can these micro clots effect the erythrocyte sedimentation rate? There has been speculation in the past that ME is associated with low values. Mine has always tested less than 5, sometimes 1. Of course that is still within range and I gather doctors are only interested in high values. But is...
  6. BruceInOz

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    How much of the difference is accounted for by NICE downgrading studies that did not require PEM. I presume cochrane did not do this. If they did, are the two more in line?
  7. BruceInOz

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    This possibility of a link to the deformability of red blood cells has been around for a while beginning with Leslie Simpson in the 1980's. I remember in 1995, soon after my diagnosis, being given a photocopy of a photocopy of an article from the local Adelaide newspaper about Simpson's ideas...
  8. BruceInOz

    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    I hope this references my paper where we surveyed 203 consecutive patients presenting at the emergency department of a local hospital complaining of leg pain. We found the strongest predictor of pathology-confirmed fracture was the patient's belief that their leg was fractured. Our conclusions...
  9. BruceInOz

    FoI request regarding an 'activist list' in the Sunday Times Magazine in May 2013

    I think the full lyrics of that song are important here. What is being wished for is the death of the "Masters of War", which makes the song about a call for the end of war and the institutions that perpetuate it, not the death of an individual. When attached to the end of a blog post as...
  10. BruceInOz

    Long COVID and ME/CFS—A Systemic Review and Comparison of Clinical Presentation and Symptomatology, 2021, Wong and Weizer

    But isn't that the point of a systematic review? To survey the previous papers and point out the common themes.
  11. BruceInOz

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I suspect that Hilda's reference to 'pounding' may be related to the insistence by most of us here that subjective outcomes in unblinded trials leads to worthless pseudoscience, and that she sees that there are those that support such trials who have differing views on this issue. I think she...
  12. BruceInOz

    Well-known, famous people with Covid-19 and Long Covid

    What's to say there weren't multiple spreaders?
  13. BruceInOz

    UK writer with ME Susanna Clarke - press articles

    Yes. No I don't think it's that at all. For me, some seemingly simple cognitive tasks just seem to require more energy than my brain can supply, at least, that's what it feels like. Trying to find an item in a cluttered drawer does it for me all the time. The longer I search, the more...
  14. BruceInOz

    New draft NICE guidelines for chronic pain emphasises exercise, CBT and acupuncture over medication

    Is there evidence to support acupuncture for pain? I had the impression such evidence was rather poor. Am I wrong?
  15. BruceInOz

    Predicting return to work after long-term sickness absence with subjective health complaints: a prospective cohort study, 2020, Weerdesteijn et al

    From the abstract I assume this is just correlation with no demonstration of causality. I imagine being more unwell makes one more likely to claim benefits and have lower expectation of recovery, etc.
  16. BruceInOz

    Anyone else in the U.K. had a letter about a covid testing study?

    I haven't read anything about the study but I'm guessing they want to know how often the tests agree, whether that's positive or negative. As such, I'd have thought they may be just as happy to get those who know they will be negative as long as they are getting a reasonably representative sample.
  17. BruceInOz

    Alterations in Brain Function After Cognitive Behavioral Therapy for Migraine in Children and Adolescents, 2020, Nahman-Averbuch et al

    When I see two numbers with overlapping error ranges like that I assume they are not statistically significantly different. I don't understand what the P < .001 means.
  18. BruceInOz

    Gaslighting's evil twin siblings: Brandolini's Law of the Asymmetry of Bullshit and Gish Galloping

    What a funny coincidence. I just googled "Brandolini's law gish gallop" since I had been thinking about how both concepts seem very relevant to the abundance of conspiracy theories that plague the modern world and this thread was at the top of the results.
  19. BruceInOz

    Crossing Chiari and syringomyelia off the list

    Of course, if we knew how to give someone severe ME for a week and then make it go away we may all be a lot better off:)
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