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  1. BruceInOz

    SEID/CFS is common in sleep centre patients with hypersomnolence: A retrospective pilot study, 2018, Trotti et al

    From the abstract: How accurate was the SEID diagnosis? I haven't chased behind the paywall but that statement does not fill me with confidence.
  2. BruceInOz

    PACE trial TSC and TMG minutes released

    Why not? They have published a graph. We quote the numbers obtained from the graph, perhaps with a footnote that the numbers were requested but denied.
  3. BruceInOz

    PACE trial TSC and TMG minutes released

    Just noticed that the appendix to the Chalder et al Lancet Psychiatry 2015 paper linked to by Graham above does have the fitness data at 0 and 12 weeks in Table D. My digitised values agree to within +/- 1 in the third significant figure for the mean and upper and lower bounds. I think this...
  4. BruceInOz

    PACE trial TSC and TMG minutes released

    My feeling is that if this the only way they have chosen to publish their data then digitising in this way to make comparisons and draw conclusions is legitimate, providing that a description of how the data was obtained from the published graph is provided. If the graph is wrong, that's their...
  5. BruceInOz

    PACE trial TSC and TMG minutes released

    I'm not sure exactly what you mean by this. In my day (20 years ago) in physics we would supply a graph in digital format (usually postscript) and the reproduction in the journal would be generated from that. I'm pretty sure the method I used would reliably reproduce data from graphs I...
  6. BruceInOz

    David Tuller lecture: CFS (aka ME) - Challenging the accepted dogma through research journalism

    My (brief) thoughts on the talk are here: https://www.s4me.info/posts/59593/
  7. BruceInOz

    PACE trial TSC and TMG minutes released

    I had done the same thing about three years ago, but I also captured the error bar ranges for both the fitness and Borg/% max HR. I would have used some open source graph digitising software like http://markummitchell.github.io/engauge-digitizer/ but I know longer know exactly which one I used...
  8. BruceInOz

    PACE trial TSC and TMG minutes released

    Yes, it's definitely power divided by change in heart rate (maximum - resting). For two people with the same power (same number of steps in the same time), the number will be higher for the person with the lowest change in heart rate from resting to maximum. For two people with the same heart...
  9. BruceInOz

    David Tuller tours Down Under!

    I was in Hobart yesterday to meet David Tuller and listen to his presentation at the University of Tasmania. He spoke to an audience of 40 or so who were mostly patients and carers with a handful of medical students and professionals. He spoke very clearly and passionately about the nonsense...
  10. BruceInOz

    SBS Australia documentary on ME

    I haven't watched "The Feed" program yet since I was in Hobart last night meeting and listening to David Tuller's presentation. Hopefully I have a recording of The Feed to watch later today. I just skimmed through the link mentioned here: and one thing stood out I think this is the at the...
  11. BruceInOz

    SBS Australia documentary on ME

    Thanks for that. I would have missed it. Set to record.
  12. BruceInOz

    ME Research UK acceptance of Fukuda/CDC definition being used in their funded research

    I think the more the line is pushed that if there isn't PEM it isn't ME the better.
  13. BruceInOz

    David Tuller tours Down Under!

    I realise it's a long shot, but is anyone here going to this lecture in Hobart?
  14. BruceInOz

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Doesn't this mean this thread should be members only to stop google search finding this?
  15. BruceInOz

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    But it does illustrate the problem rather well. He absolutely believes he is right which leads back to that wonderful quote from Richard Feynman: "The first principle is that you must not fool yourself and you are the easiest person to fool." I do think they have fooled themselves. That is a...
  16. BruceInOz

    Henrik Vogt: IOM review panel biased by patient influence

    @large donner He doesn't say the tinnitus went away. I think @Indigophoton is right - he was catastophizing so thinks everyone does.
  17. BruceInOz

    Tinnitus poll: Do you experience it?

    I have had fairly severe tinnitus in my left ear since my teen years due to a known medical condition. Fifteen years later and a few years before ME I dived into a swimming pool from a one metre board and burst my right eardrum. It is hard to remember now (27 years on) but that may have been the...
  18. BruceInOz

    United Kingdom: Science Media Centre (including Fiona Fox)

    I think you've misunderstood how it works. If you don't take something you haven't been exposed to the water's memory of the active ingredient. Pay attention Sam!
  19. BruceInOz

    David Tuller tours Down Under!

    A bit of deja vu here @Simone. 4 April is a Wednesday, not Tuesday. ETA: Sorry I see it's already being fixed.
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