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I posted my spit test on 17th October and have never received any confirmation of receipt. Is there still a backlog?

My pre-illness RHR was about 52 bpm (as a relatively fit recreational cyclist, walker). I've been using a Polar watch with separate HR monitor for about 4 yrs 9 months (started using it 6 months after major relapse). For the first 15 months my morning resting HR was very erratic ranging...

Carol Monaghan represents SNP at Westminster not Holyrood(Scottish parliament). Didn't ME Action Scotland do some good work recently on ME with the Scottish Government?

The severe group of 6 patients was a combination of moderate-severe(4) and severe(2) for the statistical analysis. Very severe patients weren't included in the study, and patients had to be able to attend the text centre 3 times over the study(I think). From a quick skim of the raw data in the...

@Grigor I had listened to the Tuller/Davenport interview and didn't find it problematic. Workwell were pleased to present the blog series for this journal which has a large audience of Out-patient physiotherapists/physical therapists. They wanted to try and get information about PEM (which...

Link to the thread discussing the blog series from the Workwell foundation which is what Todd Davenport and David Tuller are discussing in the video in the above post on Trial by Error/Virology...

I'm not clear whether they are using the 6 minute walking test (metres walked in 6 minutes) or the 6 minute step up test(number of steps onto and down from a raised step) as one of their outcome measures? If it is the 6 minute walking test, these scores are pretty low.

I've only skimmed the paper linked in the above post, so not commenting on the use of the device. I was a bit concerned about the implications of one of the questionnaires used in the evaluation. Given that we have a couple of threads on Acceptance and Commitment Therapy I thought it was worth...

I wonder what tools the authors used to measure anxiety/fear conditioning and whether they referenced this paper. The researchers of the paper below included Dr Raj who is on the medical advisory board of Dysautonomia International and the first author is his wife who is a psychiatrist. They...

When I had my TTT in 2018, my resting HR at home that morning was 69 bpm. At that time the range for my RHR varied between 60 to 100 bpm. Although I'd managed to arrange a lift home, getting to the Hospital (which was about 30 miles away) took about two and half hours and three buses with some...

The protocol for resuming exercise is from one of the references, no. 27, listed below. The authors of the protocol are sports scientists and it seems to be medical guidance for elite athletes looking to resume sport after Covid infection: "It is applicable to performance athletes who have had...

Link to Dr Geraghty's academic research profile and publications: https://www.research.manchester.ac.uk/portal/en/researchers/keith-geraghty(69f355a0-3cbb-487c-b387-c99a50446dd8).html

I worked for a time with very severely physically disabled children who had minimal voluntary control of movement and who required special equipment to be positioned comfortably even when lying on a bed or a mat. How are you supposed to perform aerobic exercise when you have virtually no...

George Faulkener's 2016 report for The Centre for Welfare Reform "In the Expectation of Recovery" gives an overview on issues with the PACE trial: https://citizen-network.org/library/in-the-expectation-of-recovery.html

Some links to Dr Systrom's work in the following threads including interviews: https://www.s4me.info/threads/persistent-exertional-intolerance-after-covid-19-insights-from-invasive-cardiopulmonary-exercise-testing-2021-singh-systrom-et-al.21821/...

Not sure if any help but the study in the first post of the thread linked below compares characteristics of housebound/non-housebound with cohorts from US, UK and Norway...

It is 15 years since I worked in the field so the use of the terminology may have changed, but my understanding of acquired brain injury was an overview term for brain injuries/damage not present from birth or the perinatal period. Traumatic brain injury results from external direct forces...

Has the WSAS been validated for physical disabilities? On a quick search it seems to be an outcome measure for mental health conditions...

Helen Naylor was on Saturday Live BBC Radio 4 this morning. I didn't listen to it. I'd been listening to the Vicky McClure interview but switched off at the introduction as it sounded familiar from this thread as I didn't feel up to facing it over my porridge...

The phrase 'your one one wild and precious life' is actually a quote from Mary Oliver's poem The Summer Day which is really says the opposite of the Gradgrind (Charles Dickens) approach which only gives people value as productive units. Although the BPS lot would probably want to call it...