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  1. Ebb Tide

    Efficacy of Whole-Body Vibration Training in Women with Fibromyalgia, 2021, Ribeiro et al

    Looking at some notes I have relating to the PACE trial re 6mwt, one study: https://pubmed.ncbi.nlm.nih.gov/17136972/ suggests that 54-80m was the minimally clinically important difference, and about 86m was needed at individual patient level to be statistically confident of change. The mean...
  2. Ebb Tide

    Guardian Article on Mark Cavendish recovering from Epstein Barr

    I saw it on the BBC website, very upset for him and his family.
  3. Ebb Tide

    Exposure to domestic abuse in women and the development of syndromes indicating central nervous system sensitization, 2021, Chandan et al

    @rvallee @Tia re potential for brain injury with repetitive trauma The retrospective study below about the increased risk of neurodegenerative disease in professional Scottish footballers (soccer)came out a few months ago. The risk was lowest for goalkeepers, and increased for those in...
  4. Ebb Tide

    Do Anxiety and Depression Predict Persistent Physical Symptoms After a Severe COVID-19 Episode? A Prospective Study, 2021, Bottemanne et al

    Forum thread on the HADs scale here https://www.s4me.info/threads/the-hospital-anxiety-and-depression-scale-hads-a-discussion.10160/ Link to the scale in the forum science library under psychiatric heading https://www.s4me.info/threads/questionnaires-and-scales-used-in-me-or-cfs-research.879/
  5. Ebb Tide

    Covid-19 vaccines and vaccinations

    I'm in Scotland. I've an appointment for my booster next week. From the letter and from older friends who have already had theirs, I understand they are doing flu and Covid boosters at the same time. I find this a worry as how can adverse reaction be monitored if you don't know which...
  6. Ebb Tide

    Crowdfunding: Trial By Error: Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Fall 2021

    Now over the line, $64,063 :) :trophy@ Thank you David, fitting to reach it today
  7. Ebb Tide

    UK: The Neurological Alliance: "My Neuro" survey, 2021 (close 6th Feb 2022)

    Helpfully it does allow you to read through the whole survey without having to fill in answers to access the next page.
  8. Ebb Tide

    TV Program: Clapped Out: Is the NHS Broken?, Dispatches, Channel 4, UK

    I watched it too. The young girl had seen 3 different GPs, after starting to fall over repeatedly at school, and it was an optician who suspected the diagnosis from her visual problems and his examination, and sent her to A & E whom he contacted directly. I think she said she lost some degree...
  9. Ebb Tide

    Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study), 2021, Stephenson and Crawley

    I don't know if this is the same study but Professor Stephenson was interviewed on the World at One on BBC Radio 4 today. Short summary on BBC live news feed, may need to to scroll down https://www.bbc.co.uk/news/live/uk-58406184 Link to programme, starts at 33mins 50 to 38 mins 10...
  10. Ebb Tide

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Perhaps he's worried he wont be able to prescribe his 5 portions of fun a day anymore: https://www.s4me.info/threads/covid-19-psychological-research-and-treatment.14419/page-6#post-266728
  11. Ebb Tide

    Symptom attribution to a [MUS] is associated with greater perceived severity and bothersomeness of symptoms in US military veterans, 2021, Phillips et

    Relevant trivia, recently came across a diary entry from a visit to a chateau in Brittany. Think this note must have related to the design of their bedroom furniture. Former generations of Bretons slept sitting up as they associated lying down with death.
  12. Ebb Tide

    Physical activity intensity but not sedentary activity is reduced in CFS and is associated with autonomic regulation, 2011, Newton et al

    I did some digging into the 10,000 steps a while ago and thought I remembered it came out of a Japanese marketing campaign. https://www.theguardian.com/lifeandstyle/2018/sep/03/watch-your-step-why-the-10000-daily-goal-is-built-on-bad-science
  13. Ebb Tide

    Physical activity intensity but not sedentary activity is reduced in CFS and is associated with autonomic regulation, 2011, Newton et al

    From a quick Google search - a short article by Frith and Newton on Fatigue Impact Scale: https://academic.oup.com/occmed/article/60/2/159/1423839#21390853 Requires signing User agreement for access and the link given in the references no longer seems to work. There is a Fisk Fatigue Impact...
  14. Ebb Tide

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    Link to post on video conversation with the author: https://www.s4me.info/threads/possibility-of-me-or-pvfs-after-covid-19-long-covid.14074/page-174#post-323382
  15. Ebb Tide

    Anyone recommend an ultralightweight hoover?

    No experience of steam mops and this doesn't help for non-laminate surfaces. I use HG laminate spray (but much, much less frequently than daily). A few squirts on a microfibre mop and you can just do a small area at a time. The mop head can go in the washing machine every so often...
  16. Ebb Tide

    Reduced endothelial function in ME/CFS - results from open-label cyclophosphamide intervention study Fluge & Mella 2021

    Link to a paper by Dr Bell on blood volume here: https://www.investinme.org/IIMER-Newslet-1510-02.shtml
  17. Ebb Tide

    Nickel allergy?

    In a former job we had to wear 'key safes' where your work keys are attached to a retractable chain in a metal unit that hooks over a belt. Unfortunately women's clothing doesn't necessarily come with belts loops so I just had to hook mine over the waist band. I'm guessing the skin problems I...
  18. Ebb Tide

    Experiences of Living with Severe Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, 2021, Strassheim et al

    I haven't managed to read article properly yet but found in the acknowledgements at the end, thanks expressed to, "Researcher and Health Psychologist Practitioner, Vincent Deary for his guidance and insights into the presentations of some of the participants." He was one of the authors of CBT...
  19. Ebb Tide

    The biology of coronavirus COVID-19 - including research and treatments

    Wasn't sure where to post this and felt too wimpy to listen to it with all that went on last week... Inside Health BBC R4, broadcast 26th Jan 2021, 28 mins Available on BBC i-player: https://www.bbc.co.uk/programmes/m000rlpj "Exercise in the time of Covid It’s an exercise special on Inside...
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