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  1. Ebb Tide

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    The PIFS category required evidence of the initial infection (patient self-report not considered sufficiently reliable) with laboratory confirmation. Also had to meet Oxford CFS criteria and have syndrome present for 6 months post-infection onset.
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    Fingernail defects?

    I still have lanula on both thumbs and middle fingers but not on the other fingers.
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    Post-Traumatic Stress Disorder and Chronic Pain Conditions in Men: A Twin Study, 2020, Gasperi et al

    If it is the same person, one of the co-authors Dedra Buchwald, is mentioned quite a lot in Osler's Web. Visited Incline Village early on with Komaroff, and seems to have had an interest in looking at prevalence rates in health care settings.
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    Augmentin side effects

    I just finished a 7 day course of oral Flucloxacillin on Monday, the first time I'd taken antibiotics in 30 years. I don't seem to have had any ill effects from the meds. The infection I was taking it for had lowered my level of function (to living on toast) and I was sleeping more during...
  5. Ebb Tide

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This was on Reporting Scotland last night: https://www.bbc.co.uk/news/uk-scotland-54893317 'The data suggested that 60,000 people in the UK would go on to experience Covid symptoms for three months or more - a crude calculation based on population means this figure in Scotland is up to 6,000...
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    New Zealand Video: Exercise and ME/CFS, 2020, Lyn Hodges

    I did find the beginning quite hard going when she is talking about general exercise principles from her standpoint as an exercise physiologist, and nearly gave up, as I wasn't sure where it was going. But was glad I stuck with it. She digs in further to repeat CPET. Might be better to dive...
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    New Zealand Video: Exercise and ME/CFS, 2020, Lyn Hodges

    Have watched the talk but not the questions yet. Well worth watching Need to watch again and take notes. Although small cohorts this looks really important work. She discusses and is critical from her findings of NICE guidelines for exercise, GET in PACE. Was contacted by the Polish...
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    Symptom descriptions in psychopathology: How well are they working for us? (2020) Wilshire et al

    Would it be worth starting a members-only thread for anyone wanting to share personal experiences related to this thread who doesn't want to post in a public forum?
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    Organic vegetable powder (pref. UK), anyone?

    Don't know if this is any use but www.buywholefoodsonline.co.uk have some dried vegetable powders under 'wholefoods:dried vegetables' and 'superfoods'
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Although now back in Scotland, I was living in England when a virus triggered my relapse in 2017 after an extended remission. The GP (senior partner in the practice, supervised GP trainees) put 'viral illness' on my 'Fit Notes' for the first 4 months. At 4 and half months it was changed to...
  11. Ebb Tide

    ME/CFS services in the United Kingdom

    I think something is wrong with the advert. Assistant psychologists in the UK are usually people with an undergraduate psychology degree who work to gain practical clinical experience under supervision, and hope eventually to be accepted onto a doctoral post-grad programme (very competitive...
  12. Ebb Tide

    Effectiveness of an ACT‐based rehabilitation program for the treatment of chronic fatigue: Results from a 12‐months longitudinal study, 2020, Brugnera

    Am I missing something re the hours worked? At 12 month follow up they give the following for change in hours worked: "At 12 months follow-up, 42 (55.3%) individuals reported to be working more hours per week than before starting the treatment, 26 (34.2%) reported to work an equal amount of...
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    A poll on fatigue and eating

    Not sure how to answer. I have comorbid POTS and am more tachycardic after eating, with slower HR recovery even when sitting or lying down, and my temperature fluctations are greater and more rapid in their changes. But am so used to managing this by doing active any things that require me...
  14. Ebb Tide

    Coronavirus - worldwide spread and control

    Video on BBC website (4mins 45) Coronavirus: US v other countries... did it mess up its reopening? "While European countries have managed to keep new infections at bay, by the time most Americans had emerged from lockdown restrictions, a second surge in cases was already under way. Were the...
  15. Ebb Tide

    Did the Spanish flu cause ME?

    Recently I posted elsewhere about a 3 part series (each episode 28 mins) on BBC Radio 4 'Pandemic 1918' about the Spanish Flu outbreak which is still available on BBC Sounds: https://www.bbc.co.uk/programmes/m000j2ty The 3rd episode was about the long-term impact. Unfortunately with my...
  16. Ebb Tide

    Coronavirus - worldwide spread and control

    There was a piece on the BBC news channel last night about more research into Covid 19 traces in sewage in the UK (will hunt and see if I can find the link) but this article on the website gives the story: Coronavirus: Testing sewage an 'easy win'...
  17. Ebb Tide

    Japan Me Association: "Accolades for our Documentary Film"

    You can watch the 4 min Trailer for free which has English subtitles (see link above). It has background piano music. Full film 43mins running time, costs £0.79 in Vimeo for 1 week's streaming or £7.97 for download/stream anytime.
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    Hypermetabolism and COVID‐19, 2020, Yu et al

    I used to work in later stage rehabilitation of people with severe traumatic brain injury. Although I never worked with patients in the acute phase, when they were on ventilators in induced coma, my memory is that they needed nutritional input of around 5000Kcal/day because of the extent of the...
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    The biology of coronavirus COVID-19 - including research and treatments

    Towards the bottom of this BBC article Vitamin D is mentioned (haven't read it properly yet): "Meanwhile, work by Queen Mary University of London has suggested heart disease and vitamin D levels do not explain the increased risk of coronavirus in black, Asian and minority ethnic people. Both...
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    Predicting GP visits: A multinomial logistic regression investigating GP visits amongst a cohort of UK patients living with ME: Walsh et al June 2020

    In the UK, if you in are employment but unable to work after becoming sick, you will have to have regular contact with your GP in order to get 'Fit Notes' which say you are not fit for work so that you can receive Statutory Sick Pay. For the first 4 months I was ill, these only covered a 2 week...
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