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It is rare but some people develop encephalitis from the Herpes Simplex (cold sore) virus. Acquired brain injury (i.e. not from birth) would be a more appropriate grouping. ETA: The DSM: Diagnostic and Statistical Manual of Mental Disorders which Psychiatrists use to code diagnosis does...

Care homes being discussed on BBC R4 World at one right now

Mucous is what we cough up when we have chest infection. If you are unable to cough or are ventilated you need help to remove secretions. If a thick plug of mucous is blocking one of the air passages in the bronchial tree of the lungs, it prevents oxygen getting to the area of the lung where...

I had been away visiting my Mum and had been planning to come back yesterday, but came back early as the situation across the UK worsened. The journey(3-4 buses and 7 hours to cover 135 miles) usually knocks me out for 3-5 days, so fortunately I had supplies in to cover that and brought some...

Both the CCC and the ICC reference observations by Dr J A Goldstein describing a fall in body temperature after exercise in people with ME/CFS. It also gets a mention in a footnote on p. 146 of Osler's Web. The reference given in the CCC is FM Network Oct 1993, pp. 10-11, which I assume was...

Reproducibility crisis in science was discussed on BBC Radio4 Inside Science on Thursday 16th Jan at 4.30pm. I hope this is the right link to BBC Sounds: https://www.bbc.co.uk/programmes/m000d8st Interview with Professor of Zoology at Manchester University, Matthew Cobb (first item on...

I had over a decade where I thought I was recovered, before becoming ill again in 2017 and have been unable to work since. I get the impression there are others here who have experienced something similar. It would be helpful if the questionnaires could have some way of capturing those of us...

There was a short film and interview with the journalist on Newsnight last night (9th December) which I presume will be available on BBC iplayer

Would agree on all the advice above of HR monitoring on a stand test at home, before pursuing a referral. I had done it 3 times at home and the consultant was interested to have the figures and looked carefully at them. He also confirmed with a short stand test in clinic before referring me...

I don't know about the physiology behind it, but some personal observations after 18 months of HR monitoring. When I go into PEM my resting HR goes up (can be by as much as 35bpm), and my upright tachycardia is worse. But there is a point when I've overdone it too badly, where although my...

I struggle with the whole first sentence about what they think hope is and how they tie it into personal goal setting. More about tying it into CBT framework, swapping these negative thoughts for hopeful ones? There are some extraordinary people who are able to hold onto a sense of hope, who...

I watched a bit of Doc Martin on UK tv last night. Amazed to see a (fictional) GP examining a patient and concerned about her tachycardia and actually pushing physical investigations. No mention of anxiety. So far from my experience of real GPs since ME & POTS onset.

This orchestrated joke telling stuff makes me think of a time when I was still working, and we used to have an annual week long training event for staff. One year it was combined with two others regions One year I arrived after a horrendously busy time, and was launched straight into the...

In my mother's nursing textbooks (she would have trained in the early 1950s) neurasthenia was described as affecting men of a sensitive, delicate nature, and the treatment suggested was rest and withdrawal from stress and demands to a quiet environment. Women weren't mentioned under this...

I had to go to the dentist last week to have a broken tooth prepared for a crown. It took about an hour and 45 mins to have it ground back to a suitable stump for the crown. It was so exhausting just having to keep my mouth open for most of that time, even though I was horizontal. They did...

Personally I think this getting washed business is highly over-rated. Managing to feed myself has always seemed a higher priority (there is no-one else here to do it for me) and I'm 'only moderate'.

Welcome Anna. I've only been a member for few months, after following for some time before that. I don't manage to post much, but really appreciate the community support, and all the information and discussions, as well as the more fun/social threads. I hope you enjoy being here.

Jennie Spotilla writes about METs in relation to her 2 day CPET in her Occupy Me blog: http://occupyme.net/exercise-testing-and-results/ Full Compendium Physical Activities of METs here: https://sites.google.com/site/compendiumofphysicalactivities/ METs in relation to pwME and 2 CPET is also...

Years ago, when I worked with people with learning disabilities, we did training workshops where staff participants took turns to be 'patients' and 'carers'. 'Patients' were given details of their disability and role played it while experiencing being fed, moved from bed to chair, etc.. Some...

Hi, ladycatlover, there is an old fashioned outfitters in the next town to me which sells 'sensible' underwear. I have to go back there to the dentists in a couple of weeks so I could investigate. My mum prefers the sort you mention and I think she did find some a while ago. I will ask her.